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Autism - Support Across the Spectrum Autism - Support Across the Spectrum

I wish she didn't have autism. No words can describe how I'm feeling

Posted by on Aug. 25, 2014 at 9:35 PM
  • 70 Replies
1 mom liked this

My 2 and half years old daugther was diagnosed months ago. First the said she had SPD (Sensory Progressing Disorder) and the Autism. They said her case is very mild but still I wish she didn't have it at all. 

I wish she could tell me about her day when I come from work, tell what she ate...

She wish we can really communicate instead of her just repeating most of what I say whithout understanding.

I wish.........................................

I wish I didn't to cry myself to sleep every night but jusst count my blessings and be thankful

by on Aug. 25, 2014 at 9:35 PM
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Replies (1-10):
Macphee
by Silver Member on Aug. 25, 2014 at 9:37 PM
Hugs

Ds was diagnosed at 3. He is now 7. I remember how many nevers and can't moments I have. This journey doesn't become easier, you learn from your guide.
JudyE07
by Member on Aug. 25, 2014 at 9:43 PM

Ask if your local school board has a program for children with autisim. Mine did and it helped with some things and I saw somewhat of an improvement and a lot of the rest has been prayer.

Momof4AEMW
by Gold Member on Aug. 25, 2014 at 9:44 PM

Hugs Mama.  Hang in there.  Good therapy and early intervention can do wonders!!!  I was so frustrated at age 2/3, and now many of those challenges have resolved.  Granted they get replaced by new ones, but the new ones are not nearly as bad as the younger years.  Big hugs! 

Roky2012
by Member on Aug. 25, 2014 at 10:12 PM

She will a program next week. I'm trying so hard not to lose faith. You gave me some hope. Thank you!

Quoting JudyE07:

Ask if your local school board has a program for children with autisim. Mine did and it helped with some things and I saw somewhat of an improvement and a lot of the rest has been prayer.


Roky2012
by Member on Aug. 25, 2014 at 10:16 PM

Thank you. It helps to know it might get better. Starting to feel hopeful.

Quoting Momof4AEMW:

Hugs Mama.  Hang in there.  Good therapy and early intervention can do wonders!!!  I was so frustrated at age 2/3, and now many of those challenges have resolved.  Granted they get replaced by new ones, but the new ones are not nearly as bad as the younger years.  Big hugs! 


Macphee
by Silver Member on Aug. 25, 2014 at 10:17 PM
1 mom liked this
Hugs mama.
Denial can cripple intervention. Ds sounds like your girl, it took him having no reflex to boiling water to wake me up.

All the questions you're asking are normal for any kid. They become magnified for our kiddos who we feel are even more vulnerable. The key is specialists and parenting.

Ds has been bullied. He has also beaten two kids in a fight bigger than him. He has yet to make a friend at school, but he makes friends with animals. No joke, he had a walrus rubbing against the glass of a tank. It's like magic. He walked away and the animal swam away. His best friend was a dog for years until he died. Now for him his brother is his best friend.

He could only use words through mimicking "echo lalia". I do not let him out of my sight as much as I can help it. Now, he tattles on me. Lots is speech, ot and Aba. Aba was not covered by insurances as necessary until last year. It changed our lives. So 3-6, I was his behavior specialist guessing at best.

We have tried basketball, soccer and swimming. 1/3 successes is pretty good.
Roky2012
by Member on Aug. 25, 2014 at 10:18 PM

Not easy at all. May we remain strong specially for our little ones

Quoting Macphee: Hugs Ds was diagnosed at 3. He is now 7. I remember how many nevers and can't moments I have. This journey doesn't become easier, you learn from your guide.


Simran81
by Bronze Member on Aug. 25, 2014 at 10:18 PM

At 2.5 my son had just 40 words. The 2 s were hardest, it does get better at 3. I can see the difference this year. It will get better though the worrying will always be there I guess.

Roky2012
by Member on Aug. 25, 2014 at 10:30 PM

Oh wow! You're super mom. Great job on being his therapist for so long. I try 20 minutes floor time with her everyday but it's hard. 

She has this friend she really likes. They are always happy to see each other at the playground. They are about he same age. I'm crossing my fingers that this friendship continues. I'm friends with mom. He gets confused---- frustrated when he feels like my daugther doesn't undertand him. 


Quoting Macphee: Hugs mama. Denial can cripple intervention. Ds sounds like your girl, it took him having no reflex to boiling water to wake me up. All the questions you're asking are normal for any kid. They become magnified for our kiddos who we feel are even more vulnerable. The key is specialists and parenting. Ds has been bullied. He has also beaten two kids in a fight bigger than him. He has yet to make a friend at school, but he makes friends with animals. No joke, he had a walrus rubbing against the glass of a tank. It's like magic. He walked away and the animal swam away. His best friend was a dog for years until he died. Now for him his brother is his best friend. He could only use words through mimicking "echo lalia". I do not let him out of my sight as much as I can help it. Now, he tattles on me. Lots is speech, ot and Aba. Aba was not covered by insurances as necessary until last year. It changed our lives. So 3-6, I was his behavior specialist guessing at best. We have tried basketball, soccer and swimming. 1/3 successes is pretty good.


Roky2012
by Member on Aug. 25, 2014 at 10:31 PM

I was a little denial at first. I was focust on her qualities (being able to count, sing the alphabet, reads letters and numbers, great with flashcard,...) Ever since she is been diasgnosed most of my focus is about how hyper she is, the tantrums, the fact that we don't really have conversations-----she just repeats after me. 

She's been receiving OT, PT and ABA and will start a program at a development  center. I hope will see improvements soon.

She's our everything. We love her so so much and really things were a little different. 

Sometimes I think about the future and it scares the hell out of me.  Will she be able to make good friends?Will she bullied? Will she able to stand for herself? Will she be able to impress herself----tell me with things are wrong, specially she is being mistreated somewhere?

It's scary.

Quoting Simran81:

At 2.5 my son had just 40 words. The 2 s were hardest, it does get better at 3. I can see the difference this year. It will get better though the worrying will always be there I guess.


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