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Autism - Support Across the Spectrum Autism - Support Across the Spectrum

Its not fair

Posted by on Aug. 26, 2014 at 9:52 AM
  • 20 Replies

I always knew my daughter was diffrent. When she was 8 months old and i would get off work and pick her up she would bite me. She was so excited to see me. At 2 she would rock in place and jump on her tip toes and run back and forth in the house. She really didnt speak that much but it was enough for my husband and I undertood her. She has a mild speech problem. When she started preschool the teacher said she thinks something was wrong with her hearing. My daughter didnt like when people would sing it was to loud, if a cop car, fire truck etc would pass by her she would hold her hands to her ears and cry. I took her to a specialist and they said her hearing was fine. At 5 years old everything started to change she did not want the doctor to see her. She would lock herself in the bathroom while her siblings were seeing the doctor. I had been telling the doctor my concerns. Until she was 5 thats when her primary said to get her evaluated. Well the specialist said she didnt have ASD she had sensory seeking habits. When she started kinder i made sure the school knew of her diagnosis. She had an awesome kindergarten teacher that helped get occupational therapy and the extra help with her learning disability. When she went to first grade the teacher thought she had ASD but the doctor did not say she had it. Now it almost 3 years since i got the sensory seeking diagnosis. She still rocks jumps on tip toes flairs arms does not look at you when you are talking to her and also is routine driven. i thought i was crazy. Until i got a second opinion not by choice but because the doctor that saw her first left the practice. She did my daugters vitals talk to her for a little while. Then the doctor looked at me and asked me DO YOU THINK YOUR DAUGHTER HAS AUTISM ? I could have kissed her and hugged because finally someone saw what i have been seeing. Its not fair that me as her mother knew this whole time. I am not saying its a bad thing. If she would have been diagnosised earlier it would have been alot easier for my family to accept. When people talk about autism they automatically think the patient doesnt talk and if they do its only one or two words. My daughter is in a regular class has friends that dont treat her any different. My husband and I make her way of life easy for her. Its not fair she will be 8 in November that now is when we find out. Doctors need to listen to the parents the signs were there and are still there. She has a mild case but she still has autism. I am a proud mom of 3 and she is the only one. My other 2 children do not look at her as a special needs child never did. I am so greatful of that. I know i wrote alot but i had to get my story out. Thank you for reading will keep an update on my Renee.

by on Aug. 26, 2014 at 9:52 AM
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Replies (1-10):
dawncs
by Dawn on Aug. 26, 2014 at 9:58 AM

I hate when doctors do not listen. I once had a doctor like that who never listened to my concerns. I dropped her after several visits. She did not even take seriously that I had a gluten or wheat problem that was diagnosed by a gasterenterologist a year or two before. That doctor did not even know a wheat allergy on its reactions. Luckily, she was not my primary care physician who is great. I am so glad I ditched her, and she was not worth my copays or insurance payment.

myrenee06
by Member on Aug. 26, 2014 at 10:35 AM

hopefully now they will listen to me it just sux

darbyakeep45
by Darby on Aug. 26, 2014 at 11:32 AM

 Hugs and welcome!

myrenee06
by Member on Aug. 26, 2014 at 11:38 AM

thank you

shunnicutt
by Stephanie on Aug. 26, 2014 at 11:43 AM
1 mom liked this

 I completely understand.  My son was diagnosed a lot earlier, but it was only because we grew concerned and eventually switched from the pediatrician he had since birth, when he was three years old.  When we went to the new pediatrician, the first thing he said was, have you ever considered your son my have autism?  We were finally able to start intervention from there.

Every time we expressed concern to his first pediatrician, he would just say, well, I'd like to see him again in six months.  And then the same each visit.  He would never address our concerns.

My son is starting pre-k with an IEP in place and getting therapies we would never have known about if not for the new pediatrician.  It is amazing how doctors can let us down.  You really have to be pushy and never settle when it comes to your family's health.

HUGS!

myrenee06
by Member on Aug. 26, 2014 at 12:42 PM

i am glad ur sons doctor listened to u now. the problem was with the specialist. my daughter primary didnt want to go against the specialist but he knew as well she was autistic. HUGS BIG HUGS to u and ur family

wildchild.com
by Janine on Aug. 26, 2014 at 2:25 PM
1 mom liked this
Hello & welcome!
Momof4AEMW
by Gold Member on Aug. 26, 2014 at 2:27 PM
1 mom liked this

Welcome to the group!

TheJerseyGirl
by Michele on Aug. 26, 2014 at 2:29 PM

 That's how it was for me when he fially got diagnosed! It wasnt the usualy sorrow you'd think I'd have, but THANK GOD! It's in black and white now and maybe someone will listen to me and help us!!

myrenee06
by Member on Aug. 26, 2014 at 3:49 PM
1 mom liked this

thank you everyone i didnt know how much support is really out there. also how many families are going through what iam going through. HUGS BIG HUGS

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