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Finding the right group

Posted by on Mar. 30, 2016 at 8:12 PM
  • 11 Replies
Hi. My name is Jennifer. My son isn't on the spectrum but has speech and language disabilities and is in PPCD program through the school system. Is there a group more specific to that I wonder?
by on Mar. 30, 2016 at 8:12 PM
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rebecca_new_mom
by Gold Member on Mar. 30, 2016 at 8:19 PM
1 mom liked this
Hi Jennifer. My name is Rebecca and I have an almost 4 year old with Apraxia of Speech and Autism. I think you've joined a great group :) Many of us have children with speech and language delays. Feel free to jump on in to the conversation!
MamaLauri
by Silver Member on Mar. 30, 2016 at 8:30 PM

Welcome. Many kids here have the same challenges, and the great mamas here are happy to share and support.

emarin77
by Gold Member on Mar. 30, 2016 at 8:53 PM

Does your son have listening difficulties or not able to process what others say?  Does he have expressive language disorder?  This can be due to APD, auditory processing disorder.  Diagnosed by a Dr. audiologist.

jndavey
by New Member on Mar. 30, 2016 at 9:02 PM
I've never heard those terms specifically. He is in the ppcd(preschool program for children with disabilities) through the school system. He goes 5 days a week 3 hours a day. And sees a speech therapist one day a week during that time. He has speech disorder and also language disorder which enables him to be able to understand all information being spoken to. He doesn't talk much but also doesn't understand things and words like a regular 3 year old. But his hearing is fine. This is said to be from his almost non stop ear infections and issues since birth. He's had 3 surgeries all less than a year apart with the last one in December.
ineedcoffeemom
by Brittaney on Mar. 30, 2016 at 9:25 PM

How was your son diagnosed with Apraxia? How long did it take someone to notice? That's another question I've sent to Cheyanne's speech therapist at school. I think she might have speech apraxia.

Quoting rebecca_new_mom: Hi Jennifer. My name is Rebecca and I have an almost 4 year old with Apraxia of Speech and Autism. I think you've joined a great group :) Many of us have children with speech and language delays. Feel free to jump on in to the conversation!


rebecca_new_mom
by Gold Member on Mar. 30, 2016 at 9:38 PM

When Ethan was less than 2 years old his first SLP wrote in her report that she "suspected CAS."(apraxia). Ethan could make some CV or CVCV combos, but barely. After seein her for a year I wanted to find an apraxia specialist. So before turning 3, I found someone to administer the Kaufman Speech Praxis Test. He tested as "moderate to severe." So we switched SLPs and the new one started using facial cueing, Prompt, and Kaufman approach to target his specific speech therapy needs. He is doing great now! Currently Ethan can say 4-word phrases!!! He has a hard time getting all the sylabols of the words he's saying, sometimes uses simplified versions of words (wa-wer is water) and he can be hard to understand. But HUGE, big time progress! I was so scared when he was 2 that he would never speak.

Definitly talk to Cheyenne's SLP and see what she thinks. Ask if she's ever administered that test. CAS is something I've really educated myself on because of Ethan and now it looks like Ari might have it too. :( I've even seen Nancy Kaufman speak, she's inspirational.

Quoting ineedcoffeemom:

How was your son diagnosed with Apraxia? How long did it take someone to notice? That's another question I've sent to Cheyanne's speech therapist at school. I think she might have speech apraxia.

Quoting rebecca_new_mom: Hi Jennifer. My name is Rebecca and I have an almost 4 year old with Apraxia of Speech and Autism. I think you've joined a great group :) Many of us have children with speech and language delays. Feel free to jump on in to the conversation!



ineedcoffeemom
by Brittaney on Mar. 30, 2016 at 9:48 PM

Cheyanne's last speech eval was 2 years ago and she didn't speak enough for them to even address possibly speech disorders, they wrote on the eval it couldn't be determined. And they refused to test her last year! I hate our school district!!!!!!!! I'm now going to make sure they test her THIS YEAR...... I mentioned testing a couple of months ago and they said they wanted to wait until next year (because that's when they HAVE to retest her by LAW) They don't want to foot the bill of ANY extra testing. 

With the words that Cheyanne says now, only the words she's practiced over and over come out the same. All the other newer words come out sounding very different each time. And even though she knows 1 thru 10 very very well, she says bede for three. She just can't say three. And it frustrates her. Sometimes she'll say bede bede bede bede bede over and over again and louder and louder because she's trying to say three and just can't. Also, many times she'll strain to actually get the word out and sometimes she just can't produce the word. And she can say the letter "L" when saying her alphabet but can't really make the l sound in any other words, like 11 is eweven. 

Does this sound like apraxia to you?

Quoting rebecca_new_mom:

When Ethan was less than 2 years old his first SLP wrote in her report that she "suspected CAS."(apraxia). Ethan could make some CV or CVCV combos, but barely. After seein her for a year I wanted to find an apraxia specialist. So before turning 3, I found someone to administer the Kaufman Speech Praxis Test. He tested as "moderate to severe." So we switched SLPs and the new one started using facial cueing, Prompt, and Kaufman approach to target his specific speech therapy needs. He is doing great now! Currently Ethan can say 4-word phrases!!! He has a hard time getting all the sylabols of the words he's saying, sometimes uses simplified versions of words (wa-wer is water) and he can be hard to understand. But HUGE, big time progress! I was so scared when he was 2 that he would never speak.

Definitly talk to Cheyenne's SLP and see what she thinks. Ask if she's ever administered that test. CAS is something I've really educated myself on because of Ethan and now it looks like Ari might have it too. :( I've even seen Nancy Kaufman speak, she's inspirational.

Quoting ineedcoffeemom:

How was your son diagnosed with Apraxia? How long did it take someone to notice? That's another question I've sent to Cheyanne's speech therapist at school. I think she might have speech apraxia.

Quoting rebecca_new_mom: Hi Jennifer. My name is Rebecca and I have an almost 4 year old with Apraxia of Speech and Autism. I think you've joined a great group :) Many of us have children with speech and language delays. Feel free to jump on in to the conversation!



rebecca_new_mom
by Gold Member on Mar. 30, 2016 at 10:03 PM

So with Apraxia children often make "successive approximations" of words. That's why Ethan is stuck at "wa-wer" for water. I would guess one successive approximation for "three" would be "tee" but there are also some children who just cannot get sounds out with apraxia. So often the SLP will either shape the sounds by putting her fingers up to the child's mouth and throat to help them see what shape their mouth should be in our do the facial cuing. The way you describe "eleven" would be a successive approximation. I wish I could upload a video here so you could hear Ethan, but I'm sure you can find other kids on YouTube. Can you have a private SLP administer that exam? Or too expensive? We were luck that our insurance covered it. One way to describe how Ethan talks is "baby talk." I know that sounds terrible, I just don't know what else to call it. He has a beautiful voice :)

Quoting ineedcoffeemom:

Cheyanne's last speech eval was 2 years ago and she didn't speak enough for them to even address possibly speech disorders, they wrote on the eval it couldn't be determined. And they refused to test her last year! I hate our school district!!!!!!!! I'm now going to make sure they test her THIS YEAR...... I mentioned testing a couple of months ago and they said they wanted to wait until next year (because that's when they HAVE to retest her by LAW) They don't want to foot the bill of ANY extra testing. 

With the words that Cheyanne says now, only the words she's practiced over and over come out the same. All the other newer words come out sounding very different each time. And even though she knows 1 thru 10 very very well, she says bede for three. She just can't say three. And it frustrates her. Sometimes she'll say bede bede bede bede bede over and over again and louder and louder because she's trying to say three and just can't. Also, many times she'll strain to actually get the word out and sometimes she just can't produce the word. And she can say the letter "L" when saying her alphabet but can't really make the l sound in any other words, like 11 is eweven. 

Does this sound like apraxia to you?

Quoting rebecca_new_mom:

When Ethan was less than 2 years old his first SLP wrote in her report that she "suspected CAS."(apraxia). Ethan could make some CV or CVCV combos, but barely. After seein her for a year I wanted to find an apraxia specialist. So before turning 3, I found someone to administer the Kaufman Speech Praxis Test. He tested as "moderate to severe." So we switched SLPs and the new one started using facial cueing, Prompt, and Kaufman approach to target his specific speech therapy needs. He is doing great now! Currently Ethan can say 4-word phrases!!! He has a hard time getting all the sylabols of the words he's saying, sometimes uses simplified versions of words (wa-wer is water) and he can be hard to understand. But HUGE, big time progress! I was so scared when he was 2 that he would never speak.

Definitly talk to Cheyenne's SLP and see what she thinks. Ask if she's ever administered that test. CAS is something I've really educated myself on because of Ethan and now it looks like Ari might have it too. :( I've even seen Nancy Kaufman speak, she's inspirational.

Quoting ineedcoffeemom:

How was your son diagnosed with Apraxia? How long did it take someone to notice? That's another question I've sent to Cheyanne's speech therapist at school. I think she might have speech apraxia.

Quoting rebecca_new_mom: Hi Jennifer. My name is Rebecca and I have an almost 4 year old with Apraxia of Speech and Autism. I think you've joined a great group :) Many of us have children with speech and language delays. Feel free to jump on in to the conversation!




ineedcoffeemom
by Brittaney on Mar. 30, 2016 at 10:23 PM

I understand what you mean by baby talk. That's basically how Cheyanne sounds too. But she also has some of that monotone type speech that I know can be common with autism. 

I don't know if the school is qualified or not. I actually met with Cheyanne's old BCBA yesterday. We were just doing a final visit and I shared everything that's happened this year and she said I can still email her with questions if I face something daunting and she may even go to our IEP meeting this year (which would be AWESOME). I always loved Cheyanne's BCBA, she just couldn't ever find behavior technicians worth a dang.

Anyway, I mentioned apraxia to her and she said it had actually crossed her mind back in December. She said she didn't hear enough to bring it up, but the fact that I suspect it now too she said to definitely look into it. I'm starting with the school and if it's not good enough, the bcba told me of an excellent speech place, one she highly recommends because they are very knowledgable and have techniques no other speech place offers. But because of that they don't even accept our insurance (even if our insurance WOULD pay, which they wouldn't) Anyways, we'll pay for the eval and if needed I'll pay out of pocket for something once or twice a month. If Cheyanne's really trying to get alot of speech out but can't because of apraxia, improving that could be a major game changer for us. School always falls back on her communication being the biggest issue. (which is why I'm kinda peeved the speech therapist hasn't ever broached the subject of there being a speech disorder!!!!)

Quoting rebecca_new_mom:

So with Apraxia children often make "successive approximations" of words. That's why Ethan is stuck at "wa-wer" for water. I would guess one successive approximation for "three" would be "tee" but there are also some children who just cannot get sounds out with apraxia. So often the SLP will either shape the sounds by putting her fingers up to the child's mouth and throat to help them see what shape their mouth should be in our do the facial cuing. The way you describe "eleven" would be a successive approximation. I wish I could upload a video here so you could hear Ethan, but I'm sure you can find other kids on YouTube. Can you have a private SLP administer that exam? Or too expensive? We were luck that our insurance covered it. One way to describe how Ethan talks is "baby talk." I know that sounds terrible, I just don't know what else to call it. He has a beautiful voice :)

Quoting ineedcoffeemom:

Cheyanne's last speech eval was 2 years ago and she didn't speak enough for them to even address possibly speech disorders, they wrote on the eval it couldn't be determined. And they refused to test her last year! I hate our school district!!!!!!!! I'm now going to make sure they test her THIS YEAR...... I mentioned testing a couple of months ago and they said they wanted to wait until next year (because that's when they HAVE to retest her by LAW) They don't want to foot the bill of ANY extra testing. 

With the words that Cheyanne says now, only the words she's practiced over and over come out the same. All the other newer words come out sounding very different each time. And even though she knows 1 thru 10 very very well, she says bede for three. She just can't say three. And it frustrates her. Sometimes she'll say bede bede bede bede bede over and over again and louder and louder because she's trying to say three and just can't. Also, many times she'll strain to actually get the word out and sometimes she just can't produce the word. And she can say the letter "L" when saying her alphabet but can't really make the l sound in any other words, like 11 is eweven. 

Does this sound like apraxia to you?

Quoting rebecca_new_mom:

When Ethan was less than 2 years old his first SLP wrote in her report that she "suspected CAS."(apraxia). Ethan could make some CV or CVCV combos, but barely. After seein her for a year I wanted to find an apraxia specialist. So before turning 3, I found someone to administer the Kaufman Speech Praxis Test. He tested as "moderate to severe." So we switched SLPs and the new one started using facial cueing, Prompt, and Kaufman approach to target his specific speech therapy needs. He is doing great now! Currently Ethan can say 4-word phrases!!! He has a hard time getting all the sylabols of the words he's saying, sometimes uses simplified versions of words (wa-wer is water) and he can be hard to understand. But HUGE, big time progress! I was so scared when he was 2 that he would never speak.

Definitly talk to Cheyenne's SLP and see what she thinks. Ask if she's ever administered that test. CAS is something I've really educated myself on because of Ethan and now it looks like Ari might have it too. :( I've even seen Nancy Kaufman speak, she's inspirational.

Quoting ineedcoffeemom:

How was your son diagnosed with Apraxia? How long did it take someone to notice? That's another question I've sent to Cheyanne's speech therapist at school. I think she might have speech apraxia.

Quoting rebecca_new_mom: Hi Jennifer. My name is Rebecca and I have an almost 4 year old with Apraxia of Speech and Autism. I think you've joined a great group :) Many of us have children with speech and language delays. Feel free to jump on in to the conversation!




rebecca_new_mom
by Gold Member on Mar. 30, 2016 at 10:30 PM

Having an SLP trained in the main apraxia techniques will be beneficial. Perhaps it will also get her additional speech therapy in school, it did with Ethan at least. It's interesting, I have 3 mom friends here in San Francisco all with kids who have both ASD and CAS.

Quoting ineedcoffeemom:

I understand what you mean by baby talk. That's basically how Cheyanne sounds too. But she also has some of that monotone type speech that I know can be common with autism. 

I don't know if the school is qualified or not. I actually met with Cheyanne's old BCBA yesterday. We were just doing a final visit and I shared everything that's happened this year and she said I can still email her with questions if I face something daunting and she may even go to our IEP meeting this year (which would be AWESOME). I always loved Cheyanne's BCBA, she just couldn't ever find behavior technicians worth a dang.

Anyway, I mentioned apraxia to her and she said it had actually crossed her mind back in December. She said she didn't hear enough to bring it up, but the fact that I suspect it now too she said to definitely look into it. I'm starting with the school and if it's not good enough, the bcba told me of an excellent speech place, one she highly recommends because they are very knowledgable and have techniques no other speech place offers. But because of that they don't even accept our insurance (even if our insurance WOULD pay, which they wouldn't) Anyways, we'll pay for the eval and if needed I'll pay out of pocket for something once or twice a month. If Cheyanne's really trying to get alot of speech out but can't because of apraxia, improving that could be a major game changer for us. School always falls back on her communication being the biggest issue. (which is why I'm kinda peeved the speech therapist hasn't ever broached the subject of there being a speech disorder!!!!)

Quoting rebecca_new_mom:

So with Apraxia children often make "successive approximations" of words. That's why Ethan is stuck at "wa-wer" for water. I would guess one successive approximation for "three" would be "tee" but there are also some children who just cannot get sounds out with apraxia. So often the SLP will either shape the sounds by putting her fingers up to the child's mouth and throat to help them see what shape their mouth should be in our do the facial cuing. The way you describe "eleven" would be a successive approximation. I wish I could upload a video here so you could hear Ethan, but I'm sure you can find other kids on YouTube. Can you have a private SLP administer that exam? Or too expensive? We were luck that our insurance covered it. One way to describe how Ethan talks is "baby talk." I know that sounds terrible, I just don't know what else to call it. He has a beautiful voice :)

Quoting ineedcoffeemom:

Cheyanne's last speech eval was 2 years ago and she didn't speak enough for them to even address possibly speech disorders, they wrote on the eval it couldn't be determined. And they refused to test her last year! I hate our school district!!!!!!!! I'm now going to make sure they test her THIS YEAR...... I mentioned testing a couple of months ago and they said they wanted to wait until next year (because that's when they HAVE to retest her by LAW) They don't want to foot the bill of ANY extra testing. 

With the words that Cheyanne says now, only the words she's practiced over and over come out the same. All the other newer words come out sounding very different each time. And even though she knows 1 thru 10 very very well, she says bede for three. She just can't say three. And it frustrates her. Sometimes she'll say bede bede bede bede bede over and over again and louder and louder because she's trying to say three and just can't. Also, many times she'll strain to actually get the word out and sometimes she just can't produce the word. And she can say the letter "L" when saying her alphabet but can't really make the l sound in any other words, like 11 is eweven. 

Does this sound like apraxia to you?

Quoting rebecca_new_mom:

When Ethan was less than 2 years old his first SLP wrote in her report that she "suspected CAS."(apraxia). Ethan could make some CV or CVCV combos, but barely. After seein her for a year I wanted to find an apraxia specialist. So before turning 3, I found someone to administer the Kaufman Speech Praxis Test. He tested as "moderate to severe." So we switched SLPs and the new one started using facial cueing, Prompt, and Kaufman approach to target his specific speech therapy needs. He is doing great now! Currently Ethan can say 4-word phrases!!! He has a hard time getting all the sylabols of the words he's saying, sometimes uses simplified versions of words (wa-wer is water) and he can be hard to understand. But HUGE, big time progress! I was so scared when he was 2 that he would never speak.

Definitly talk to Cheyenne's SLP and see what she thinks. Ask if she's ever administered that test. CAS is something I've really educated myself on because of Ethan and now it looks like Ari might have it too. :( I've even seen Nancy Kaufman speak, she's inspirational.

Quoting ineedcoffeemom:

How was your son diagnosed with Apraxia? How long did it take someone to notice? That's another question I've sent to Cheyanne's speech therapist at school. I think she might have speech apraxia.

Quoting rebecca_new_mom: Hi Jennifer. My name is Rebecca and I have an almost 4 year old with Apraxia of Speech and Autism. I think you've joined a great group :) Many of us have children with speech and language delays. Feel free to jump on in to the conversation!





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