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Posted by on Dec. 22, 2017 at 1:37 PM
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My 20 month old is going to be evaluated for autism next week by a pediatric neurologist. He is not speaking so I've also gotten the process started to start seeing a speech therapist. He was saying a few words at 13/14 months then that speech disappeared. What other types of help should I be getting him? We had his hearing evaluated on Wednesday with the ABR test and his hearing is fine, we decided to do that test because he ignores us often and we wanted to rule out a hearing issue. What type of Dr diagnosed your child?
by on Dec. 22, 2017 at 1:37 PM
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by Bronze Member on Dec. 22, 2017 at 11:58 PM

I would lalso ook into OT, and sensory integration and a support group for you and your dh or so that might be involved with the child. It will help a lot. You would meet parents of newly diagnosed sons and daughters and learn what they have tried etc. 

Our adult son is now 33. He was diagnosed at 3  1/2 years old. I know that sounds very old now to many parents. He had some speech up until just after his 2nd birthday and then by 2 1/2 he stopped. We had his hearing tested first. The audiologist told us it was not a hearing problem. She assumed it was some type of processing problem. The developmental pediatrician we were referred to originally said, PDDNOS, and then had us come back a few months later when he was officially diagnosed with Infantile Autism. He was in a few different preschool handicapped programs. Mostly generic, not just for autism like they have now. He did have speech therapy, and eventually OT. He uses some basic signing and pictures primarily. Sometimes he does come out with works or approximations that we know what he is trying to tell us. Of course, we are thrilled and tell him that when he does. 

by Platinum Member on Dec. 23, 2017 at 8:01 AM
My son had a host of diagnoses. Psychologist (said no), another psychologist (an Aspie specialist) called him “a bridge kid” on the bridge to Autism - like higher functioning. A pediatric neurologist told me he was too young to DX (he was 3.5-not yet 5, like the Dr suggested we come back at) that certain “delays” could skew the test. We had another pediatric neurologist say yes, Aspergers at not yet 4. His pediatrician told me “I just don’t see anything wrong.” And school just told me in kindergarden that he was gifted (with social delays, sensory challenges and anxiety - HELLO- That sounds like Autism!)

Anyway, looong road for us in finding Sam a helpful, understanding, environment.

Have you contacted early intervention? Does he have delays aside from speech?

I too would probably recommend 3 things.

Educating yourself on Autism/Aspergers/PDDNOS. I’d read Jed Baker, Richard Lavoie and Ross Greene. id look at Kazdin from Yale.
Id read about sensory challenges (Out of sync child and/ biel “raising a sensory smart child”. There was also another book (too snuggly warm to get up - will post later) As sensory /OT challenges are really complex and I think if you “get it” early, you (& kiddo) will be better of.

I’d recommend an OT as well for your son to work on fine motor, bilateral skills and sensory integration.

I’d also recommend a therapist for you to talk to. Find one who has experience with kids w/ Autism.
For me, Because MY worst experiences have been with people/Drs who think “kids with autism” are “juuuussst” like everyone else. And that is simply not true and frustrating as all hell. Lol!!! Yes, they are individuals- and my kid is awesome! And I love him... but he has challenges due to Autism that are not “juuussst” like everyone else.

Sam is 11.
by Karen on Dec. 27, 2017 at 3:55 PM

Once the neurologist evaulates him take the write up and contact your local heath department. They should have a 0-3 program, they will help you get everything started.

Take a deep breath, things can get crazy fast. Just slow down and tackle things one at a time. We are here if you need to vent.

by Member on Dec. 28, 2017 at 12:52 PM

You might also want to make an appointment with a Developmental Pediatrician.  That and the Pediatric Neurologist should serve you well as far as getting accurate diagnosis.  Once you have a diagnosis, get in touch with your local health department or school district - they can let you know how to get Early Intervention services that your son may need.  In NY it is through the health dept. up to age 3 and then the school district takes over.  For my son, the Dev. Pediatrician diagnosed his ASD and years later the Ped. Neurologist diagnosed Tourrette's Syndrome.

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