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*UPDATE* I'm so nervous! Cole's eye specialist appointment is tomorrow morning.

Posted by on Mar. 14, 2013 at 2:41 PM
  • 32 Replies

I don't know why I'm so nervous. I am fairly sure he will need glasses and an eye patch. I hope he doesn't need surgery. It seems to be done only for cosmetic reasons, which he doesn't need since his eye doesn't move which is why we didn't know there was a problem. OY! I think I'm hoping that they are just going to tell me that the regular eye doctor was wrong and Cole is fine. LOL


Update: Well, he needs glasses and an eye patch. Surgery wasn't off the table, either. *sigh* He is older than they like to see and told me he is right on the cusp of them being able to help. The fact that schools usually do I exams in 1st grade kind of hung in the air. Cole is only in second grade, though and just now 8 so I'm just going to ignore the quietly implied criticism. Maybe it was more in my head because I, myself, feel so guilty about it.

by on Mar. 14, 2013 at 2:41 PM
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Replies (1-10):
MamaDearie
by Member on Mar. 14, 2013 at 2:48 PM

Best of luck to you! My DS has a congenital ptosis and has been followed by a pediatric opthamologist since birth. So far- it hasn't affected his vision at all and surgery would only be done for cosmetic reasons (which we leave up to him- since it's his body). I'm not sure what your little guy's problem is but please know you and he are in my prayers!

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romacox
by Silver Member on Mar. 14, 2013 at 4:33 PM


Let us know how it goes. good luck

mem82
by Platinum Member on Mar. 14, 2013 at 4:38 PM

What is congenital ptosis? It sounds scary. I"m glad it hasn't hurt his vision at all. We'll get a better picture of what is wrong with Cole's eye tomorrow.

Quoting MamaDearie:

Best of luck to you! My DS has a congenital ptosis and has been followed by a pediatric opthamologist since birth. So far- it hasn't affected his vision at all and surgery would only be done for cosmetic reasons (which we leave up to him- since it's his body). I'm not sure what your little guy's problem is but please know you and he are in my prayers!


mem82
by Platinum Member on Mar. 14, 2013 at 4:38 PM
1 mom liked this

I will!

Quoting romacox:


Let us know how it goes. good luck


usmom3
by BJ on Mar. 14, 2013 at 5:07 PM

 Heres hoping for the regular Dr. was wrong & he is fine!

mem82
by Platinum Member on Mar. 14, 2013 at 5:08 PM

Cheers! lol

Quoting usmom3:

 Heres hoping for the regular Dr. was wrong & he is fine!


oredeb
by on Mar. 14, 2013 at 5:09 PM

awwwww well thats what i hope they tell you! but if not at least you found out what you need to do,

mem82
by Platinum Member on Mar. 14, 2013 at 5:16 PM

Thanks!

Quoting oredeb:

awwwww well thats what i hope they tell you! but if not at least you found out what you need to do,


MamaDearie
by Member on Mar. 14, 2013 at 7:03 PM
It's not scary. :-) It's basically a droopy eyelid. The muscles in one of his eyes isn't as strong as the other one. You don't even notice it all the time. It becomes very apparent when he is tired. We have followed it closely because it can cause vision problems and can be linked to other issues in some cases. We have just been blessed that in his case it seems to be limited to his eyelid and some overall muscle weakness in his eyes. So far he doesn't need glasses at all and he reads like a champ so it isn't causing him any problems we can find. :-) Sometimes he complains that he doesn't like how he looks in pictures but he knows if he ever decides he wants surgery, we will totally support him (and if he doesn't, we will support that too.)
Quoting mem82:

What is congenital ptosis? It sounds scary. I"m glad it hasn't hurt his vision at all. We'll get a better picture of what is wrong with Cole's eye tomorrow.

Quoting MamaDearie:

Best of luck to you! My DS has a congenital ptosis and has been followed by a pediatric opthamologist since birth. So far- it hasn't affected his vision at all and surgery would only be done for cosmetic reasons (which we leave up to him- since it's his body). I'm not sure what your little guy's problem is but please know you and he are in my prayers!


"Of all the rights of women, the greatest is to be a mother." (Lin Yutang)

Lilypie Kids Birthday tickersLilypie Fifth Birthday tickers Lilypie Third Birthday tickers

Lilypie Breastfeeding tickers

Daisypath Anniversary tickers

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irvinehiker
by Andrea on Mar. 14, 2013 at 8:03 PM

Hope it goes well!  I sure hope Cole doesn't get stressed about the appt.  My kiddos don't like new and unpredictable things like this.  Good luck!

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