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6 Mos old baby Experimented on at CCHMC without our Knowledge

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I ask that you please share my daughter, Hailey Reuter's story. She was diagnosed with simple Metopic craniosynostosis at 4 months of age and underwent an experimental surgery at 6 months of age. It has been a very long journey and continues to be. She has multiple health issues from it. We were never told nor ever told even after the fact by CCHMC, we didn't find out until after 10 months after her first surgery in Dallas TX where a doctor requested to see her medical records. Her case was just filed in court this week and we are allowed to share her story.

Included is a video with detailed pictures and her medical documentation.  

http://www.youtube.com/watch?v=6jsfWWB3f2E

Thank you in advance!!

by on Jan. 10, 2013 at 11:47 PM
Replies (11-17):
tastelikeyum
by on Jan. 12, 2013 at 12:11 AM

Omg how awful! How is she now? Do you have any up dated pictures?

Kris_PBG
by Representative on Jan. 12, 2013 at 9:27 AM
Oh my goodness!!! I am so sorry!!!!
aprilmcgraw
by Member on Jan. 12, 2013 at 9:29 AM
Wtf.that poor little girl.
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TriciaReuter
by New Member on Jan. 12, 2013 at 12:50 PM

I will post updated pictures. She has started to tower again, brain pushing through the top of her head. She is extremely tiny, she stopped growing in height at 2 years of age, she still has a lot of her bag of issues, her mid facial area hasn't expanded since 18 mos go age and we are already being told that she will need a palate (mouth) expansion when she turns 5. When the sutures prematurely fused after the implant it affected her facial features as well.

PurpleHazey
by Angie on Jan. 13, 2013 at 6:41 PM

Oh NO! I would seek some kind of legal advice to help pay for her medical bills.

PurpleHazey
by Angie on Jan. 13, 2013 at 6:42 PM

Welcome to the group.

TriciaReuter
by New Member on Jan. 24, 2013 at 1:24 PM

We did, her attorneys just filed in court 2 weeks ago.

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