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cystic fibrosis groups?

Posted by on Oct. 23, 2013 at 2:07 PM
  • 7 Replies
Idk why but I'm trying to find groups for cystic fibrosis and its saying there are none found. (Maybe my phone being jacked up?) If anyone knows pls let me know. My newborn granddaughter was dx with it.

Thank you
by on Oct. 23, 2013 at 2:07 PM
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Replies (1-7):
amonkeymom
by Amy on Oct. 23, 2013 at 3:30 PM
1 mom liked this

Aw, I'm sorry your little granddaughter was born with this illness.

We don't have group specific to CF, but I think you might like our Raising Special Needs Kids group.  I know of at least one or two others there who have a child with CF.

proudgrammie07
by New Member on Oct. 25, 2013 at 6:38 PM
Thank you. It's very interesting that there is no group specifically for CF. :(
hayliedlr
by JoAnna on Oct. 25, 2013 at 7:06 PM
1 mom liked this

you could make one.  One of my friends has a daughter with it.  I'm sorry about your granddaughter

lachiche
by New Member on Oct. 26, 2013 at 1:22 PM
1 mom liked this

it will be nice if we had one i my self has it .

proudgrammie07
by New Member on Oct. 28, 2013 at 3:33 AM
Thank you. I wouldn't even know where to start on starting a group. I'd love it if someone who knows more about CF started one cause I'm completely new to all of this. Any takers? Lol

Quoting hayliedlr:

you could make one.  One of my friends has a daughter with it.  I'm sorry about your granddaughter

darbyakeep45
by on Dec. 28, 2013 at 11:21 PM

Welcome! My 5 year old has CF. feel free to PM me with any questions!

aj_mom
by Bronze Member on Dec. 30, 2013 at 5:26 PM

try the inspire network

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