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She was misdiagnosed!

Posted by on Nov. 5, 2012 at 11:57 AM
  • 17 Replies

My dd was diagnosed with adhd about a year ago.  they put her on medications and we didn't see a single change.  well we don't have her on meds on the days she doesn't have school (something her doctor said is ok).  well she was acting wierd and scared to go to school when it came to going to school and we have been having conference after conference with the teachers and the principal and they have been watching and seeing nothing negative minus her spacing out.  We talked to her last week and it turns out the meds were making her hallucinate.  we took her to her doctor to see what we can do, the doctor sent us to a pshychiatrist who confirmed with a few tests that she doesn't have adhd, she definately has OCD (which you can't take adhd meds if you have ocd cuz it will make the anxiety much much worse) and he said she has some form of CDD.  they know its not autism because she didn't exhibit any signs until after the age of 3.  i feel bad just sending her to school not knowing whats going on, but her teacher knows whats going on and is being sensitive to her meltdowns and outbreaks so far (she's only gone to school 3 days without meds so far).  I'm just so lost, does anyone have special needs kids?  i'm currently taking a love and logic class so hopefully i can learn some helpful stuff through that.

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by on Nov. 5, 2012 at 11:57 AM
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Replies (1-10):
Pammi86
by Pamela on Nov. 5, 2012 at 11:58 AM

Sorry about that! Hope things are getting much better and you learn a lot from your class! : )

goddess99
by Michelle on Nov. 5, 2012 at 1:16 PM

aww that's too bad. I take advice from people I trust. My dd is 10 and so far I've only taken advice from 1 person and that was 8 years ago lol. If the class helps then I would continue to go. Everyone parents differently.

DixieFlower
by on Nov. 5, 2012 at 1:48 PM
1 mom liked this

So sorry about the misdiagnosis. I will say though that there are forms of Autism that signs aren't exhibited until later ages. One that comes to mind with what you've said is Asperger's (aka higher functioning Autism). Many times this is misdiagnosed early on as ADHD.  When you mentioned OCD that's another one that the "signs" are very similar to Asperger's. Because those with Asperger's have repetitive routines or rituals. My nephew was DX'd with ADHD when he was 5. When he was 7 we had him evaluated and his initial DX was PDD-NOS. By the end of all of the evaluations (1 yr) they added Asperger tendencies and ODD to his DX

jamamama00
by on Nov. 5, 2012 at 2:09 PM

I have an autistic child. I don't even know where to start. First of all, doctors really can't "confirm" that your child does or doesn't have any certain disability. You can take your child to five hundred different doctors/psyhologists/psychiatrists/specialists and you will probably be told five hundred different things. Seriously. I've been there. Personally, I would get my child off the meds asap...but I hate to tell you that because it's a very personal decision. Those ADD pills are just revamped meth...yet certainly, there are children who are absolutely out of control without meds. We took love and logic courses on the advice of one of our therapists and found it extremely beneficial for dealing with our OTHER children, but not our 'problem child.' That's because autism/add/ocd don't know any logic:/ But certainly try it and see if it works for you!!! So...other details: when was she first "diagnosed?" Who did the diagnosing? What were the problems that led you to seek help in the beginning?

Janet
by Ruby Member on Nov. 5, 2012 at 4:40 PM

So sorry to hear that. My DS has mild touretts syndrome withe OCD.

HaileysMom07180
by Member on Nov. 6, 2012 at 9:25 AM

she was diagnosed with add when she was 5.  we took her in at the suggestion of her teacher because they couldn't get her to stay in her seat (she got up every 2-5 minutes).  She was also having issues with remembering to do things she was just told to do.  i would tell her to turn in her folder (which had her homework in it).  I would watch her walk into her classroom and go straight to her desk.  she was diagnosed in the first doctors visit and put on meds immediately (i didn't feel like i had much choice cuz I was given dirty looks when i said i don't want her on meds and told it was a bad choice) so we put her on the meds.  it seemed to work last year with no problems but then we had her off her meds all summer cuz she didn't have school.

Quoting jamamama00:

I have an autistic child. I don't even know where to start. First of all, doctors really can't "confirm" that your child does or doesn't have any certain disability. You can take your child to five hundred different doctors/psyhologists/psychiatrists/specialists and you will probably be told five hundred different things. Seriously. I've been there. Personally, I would get my child off the meds asap...but I hate to tell you that because it's a very personal decision. Those ADD pills are just revamped meth...yet certainly, there are children who are absolutely out of control without meds. We took love and logic courses on the advice of one of our therapists and found it extremely beneficial for dealing with our OTHER children, but not our 'problem child.' That's because autism/add/ocd don't know any logic:/ But certainly try it and see if it works for you!!! So...other details: when was she first "diagnosed?" Who did the diagnosing? What were the problems that led you to seek help in the beginning?


gr8d8n3mom
by on Nov. 6, 2012 at 11:43 AM

I'm so sorry about the Dr.'s mistake, I feel the Dr's today too quickly like to attatch add or adhd on kids, with out listening to the parents.

My dd wasn't diagnosed with bi-polar disorder until 11th grade! I was thinking the staying up late, and defiance, and meltdowns, and mood swings were part of being a teen ager,& being rebellious. (I felt so terrible, took me a long time to get over that, and I still struggle with it sometimes)


I wish you good luck


planning a wedding


delanna6two
by Platinum Member on Nov. 6, 2012 at 12:07 PM

Hugs...hope all will work out for you...

la_bella_vita
by Silver Member on Nov. 6, 2012 at 12:36 PM

 Sorry about that, I hope things are getting much better

ZakkarysMom
by Gold Member on Nov. 6, 2012 at 12:58 PM
There is a group called Raising Kids with Special Needs. That may help.
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