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Abnormal blood? Freaking out!!!! EDIT

Posted by on Oct. 25, 2013 at 10:58 AM
  • 14 Replies

Okay my DD is a month and two days old well we just got a call from the doctor and she said that DD's blood came back abnormal and that they would refer us to a specialist at Children's Medical Center and would call us back with an appointment for more testing.  I tried asking her what she meant by "abnormal" but she wouldn't tell e she just kept saying "needs more testing".  I get the feeling she didn't want to tell me.  I'm so worried right now.  My husband and I feel so lost right now.  No one will tell us anything about the results of the test from the doctors office.  My husbands worried about cancer in runs in both of our families.  I just need some words of encouragement please.



Edit:  Okay sorry it took me so long to edit.  It's been super crazy and scary here.  Since my post I finally got someone to tell me what was up.  Her blood test came back saying she may have Cystic Fibrosis.  We went to Children's for the second test a sweat test and had to wait till monday to get any results.  Her sweat test came back normal but now they want us to go to a Cystic Fibrosis Clinic.  Why would they want us to go there if her second test came back normal?  I have a feeling there's more they arn't telling us.  I feel I will have a head full of grey hair before this is over and I'm only 24.  Super scared and Super stressed.

by on Oct. 25, 2013 at 10:58 AM
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Replies (1-10):
goddess99
by Michelle on Oct. 25, 2013 at 11:13 AM

hugs  I'm so sorry, hopefully it's nothing serious and they just want to rule things out. Stay strong and please keep us updated.

Mrs.Thomason
by Member on Oct. 25, 2013 at 11:18 AM

Just found out they think it's cystic fibrosis


Quoting goddess99:

hugs  I'm so sorry, hopefully it's nothing serious and they just want to rule things out. Stay strong and please keep us updated.



goddess99
by Michelle on Oct. 25, 2013 at 11:24 AM

I'm sorry =( I hope they are wrong and it's nothing serious.

Quoting Mrs.Thomason:

Just found out they think it's cystic fibrosis


Quoting goddess99:

hugs  I'm so sorry, hopefully it's nothing serious and they just want to rule things out. Stay strong and please keep us updated.




bldsukr
by on Oct. 25, 2013 at 12:01 PM
Wow, I cant imagine what how you feel, Im so sorry. But Dont lose faith, your baby can live a long happy life with all the knowledge thats out there now! They will teach you what to do & what not to do! I will keep your family in my prayers! Please keep us posted on how you both are doing. <3
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natural_s
by Bronze Member on Oct. 25, 2013 at 12:49 PM

 I will keep your little on in my prayers.

We just went through the same scare of cystic fibrosis. I recently had a premature baby and his test came back positive for cystic fibrosis and  we had to wait until he was released from the NICU so he could get the sweat test which they ended up having to do twice. Praise God he does not have it.

Remember that you and dad both have to have the gene for him to have the disease it could be possible that he just has one defective gene like our son does which means he is just a carrier so hopefully that is all  it is but like someone else said even if he does (believing that he does not) they have come a long way in medicine.

 


Quoting Mrs.Thomason:

Just found out they think it's cystic fibrosis

 

Quoting goddess99:

hugs  I'm so sorry, hopefully it's nothing serious and they just want to rule things out. Stay strong and please keep us updated.

 

 


 

splatz
by Sarah on Oct. 25, 2013 at 2:12 PM

Hope everything turns out ok! 

SlapItHigh
by on Oct. 25, 2013 at 11:49 PM
1 mom liked this
I'm so sorry mama. I know this must be so scary but it is good that they take it seriously and do more testing. If it does turn out to be cystic fibrosis, she probably does not have one of the more serious mutations. My 16yo cousin has the most serious mutation and they knew right at birth because of the severe symptoms. She was diagnosed day one and in surgery within 24 hrs from being born. If your dd is a month without severe medical problems then she most likely can't have one of those strains. There are some milder mutations that respond very well to treatment and they are actually pretty close to finding a cure. But she may not have it at all so let me stop rambling. My prayers are with you and your dd.
SlapItHigh
by on Oct. 25, 2013 at 11:50 PM
1 mom liked this
Glad your son does not have CF. This is a very reassuring story, thank you for sharing!


Quoting natural_s:

 I will keep your little on in my prayers.


We just went through the same scare of cystic fibrosis. I recently had a premature baby and his test came back positive for cystic fibrosis and  we had to wait until he was released from the NICU so he could get the sweat test which they ended up having to do twice. Praise God he does not have it.


Remember that you and dad both have to have the gene for him to have the disease it could be possible that he just has one defective gene like our son does which means he is just a carrier so hopefully that is all  it is but like someone else said even if he does (believing that he does not) they have come a long way in medicine.


 




Quoting Mrs.Thomason:


Just found out they think it's cystic fibrosis


 


Quoting goddess99:


hugs  I'm so sorry, hopefully it's nothing serious and they just want to rule things out. Stay strong and please keep us updated.


 


 




 


Janet
by Ruby Member on Oct. 26, 2013 at 9:02 AM

I'm so sorry! Hopefully the baby doesn't have it! I will keep the baby and your family in my prayers. Please keep us posted.

hugs

Quoting Mrs.Thomason:

Just found out they think it's cystic fibrosis


Quoting goddess99:

hugs  I'm so sorry, hopefully it's nothing serious and they just want to rule things out. Stay strong and please keep us updated.




WILDCATGAL78
by Member on Oct. 26, 2013 at 6:32 PM

I hope everything turns out well! My daughter's blood came back abnormal as well. Except we got a letter in the mail and not a phone call. It turns out she inherited the sickle cell trait from me. Keeps us updated on how the little one is doing!

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