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Welcome to Raising Special Needs Kids! Please Introduce Yourself.....

welcomeWelcome to Raising Special Needs Kids!  We're glad you're here!

Our goal is to get you talking with other moms.

Step 1:   Introduce yourself by replying to this post.   It will help us get to know you a little bit.

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Now click reply and introduce yourself:)

 teaMake yourself at home, relax and enjoy the group!

by on Feb. 16, 2012 at 5:09 PM
Replies (1141-1150):
darbyakeep45
by Darby on Jan. 10, 2013 at 8:23 AM

Welcome!

Quoting LynLaBelle:

Hello,

I am 29 and a mother of 3 (2 stepdaughters ages 13 and 10, 1 bio daughter age 2 from a previous relationship). My husband is in the military (13 years Army). His late wife died in 2011. We all three went to high school together.

Our middle child (AM) is 10 and suffers from PTSD stemming from things she saw while her mother was alive (C was an alcoholic), being moved frequently by her mother from their home to her grandmothers home while their father was deployed (5 times), and from her mother's sudden

She also has a dissociative disorder and possible bipolar. She is not currently medicated, but is in behavioral therapy and EMDR.


darbyakeep45
by Darby on Jan. 10, 2013 at 8:23 AM

You are definitely in the right place:)  Welcome!

Quoting LyraDeus:

Hello! Not sure if I am in the right place or not but here it goes.

I'm a 32 year old, engaged mother of 2 (soon to be 3) and am raising/parenting my 28 year old disabled sister. She was born with a condition called Cornelia de Lange Syndrome which is a genetic disorder present from birth, but not always diagnosed at birth. It causes a range of physical, cognitive and medical challenges and affects both genders equally. The occurrence of CdLS is estimated to be 1 in 10,000 live births. Which makes it rare enough that most doctors have never heard of it. Accompaning the CdLS she also has Epilepsy, Anxiety, Obsessive Compulsive Disorder and Rage Disorder. She is completely deaf and aslo had problems comunicating (even though she is fluent in sign). 



darbyakeep45
by Darby on Jan. 10, 2013 at 8:24 AM
1 mom liked this

Welcome!  Love your attitude:)

Quoting gr8tmom72:

Hello.  I am a mother of 4 children, 3 girls (ages 21, 13, & 8) and a boy (10 months).  My LO has Down Syndrome.  He is a precious gift and completes our family.  We love him so so much. Down Syndrome: "So What!"


darbyakeep45
by Darby on Jan. 10, 2013 at 8:27 AM

Welcome Vanessa!

Quoting VMS1202:

hey everyone my name is Vanessa and i am 27. I dont have any children of my own but i am helping my SO raise his 3 children. His 11 yr old daughter and 7 yr old son have Fragile-X and his son also has mild autism. His 9 yr old daughter has Mild to Moderate cognitive impairment.


tinkerbell_2334
by on Jan. 10, 2013 at 9:52 AM

Hello,

My Name is Cindy I'm a mom of 3 girls Alexia who is 7 yrs, Emma who is 5 and Aliyana who is 16 months old. My youngest Aliyana was born 35 weeks early at 5 lbs, she was diagnosed with Microcephaly ( small head) she started having seizures at 12 months, we have seen a geneticist , we found out she has a deletion on 6q27, a rare chromosome disorder that pretty much explains the microcephaly, reflux, seizures, her low weight gain, feeding issues and developmental delays, it's so rare that there isn't many with this so it's just a waiting game to see how she develops. I'm glad I found this group. I hope to get to know some of you. 

Dayday99
by on Jan. 10, 2013 at 10:42 AM

hi, my name is Day, i live in southern vermont. i have 5 children, 3 are grown, 2 still at home. all 3 of my boys have special needs, my oldest has aspergers syndrome, my second, adhd, and my youngest at home is hard of hearing. he wears hearing aids, which helps, and he also signs. he is also very developmentally delayed, and is attending public school. this is my battle of the moment, arguing with the school, my least favorite job, but also my most important right now.

1hot_mama27
by on Jan. 10, 2013 at 12:09 PM

Hi, my name is Amanda and I have two special needs little girls, as well as two step sons with special needs. My oldest step son is Joseph who is 13 and he has ADD and ADHD as well as siezures, my second step sons is a Jacob who is 8 and is a handful with behavioral issues. My two daughters are 4 and 2. Kaitlyn is 4 years old and has autism, severe food allergies, mild cerebral palsy, has had small strokes since birth, and has behavorial issues, My youngest is Charlotte and is 2. Charlotte has Cystic Fibrosis and is considered failure to thrive. I just take it day by day.

ahchoo
by on Jan. 10, 2013 at 2:46 PM

Hello To All The Parents Of Special Needs Children, I am 45 yrs, old have 4 grown daughters,/ a 10 yr. old son with Asperger's Syndrome. I never feel informed enough on the subject of Asperger's/ Autism, so any new info is welcomed. To all the Autistic Children that are toe-walkers/ your Orthopedic Doc tells you they have to do heel cord surgery. I want you to know that is not always the case. For instance at Children's Hospital Pittsburgh, they offer a Casting Program accompanied by Physical Therapy. Many Docs are uynaware of this Program or simply aren't telling us all of the options. It's a damn shame / I am upset abt. it as the info was only shared with me recently. Even tho we saw many Ortopedic Surgeons, since he was 7 yrs old., finally a Pyscial Therapist, I had evaluate my Son recommended the program. The unfortunate thing I heard from the Ortopedic Dr. was that it 's more succsessful on younger children. This is the same Dr. I saw when he was 7 yrs. old, I saw him jst to get the referral. He said to me why didn't you do this earlier? I said because you / the many other Orthopedic Drs. never told me. I dnt know that he looked me in the eye but once the entire visit, he seemed to shuffle thru his patients like a deck of cards. Out of 5 different Drs. not one told me about this program, not even the one Dr. who seemed to care. So investigate, research, dnt belive everything you hear. Sometimes even they don't even know all the options.Never Give Up !!!!

avfields12
by on Jan. 10, 2013 at 4:52 PM

Hello:) My name is Andrea. I am 35, have 2 girls ages 11 and 7, 2 dogs, a female Pit Bull and Male Bernese Mountain Dog, and have been married since Feb 2000 to my best friend and love of my life<3

My 11-year-old has a genetic disorder called Langer-Geidion Syndrome, or TRPS Type II. click here: http://en.wikipedia.org/wiki/Langer%E2%80%93Giedion_syndrome It is a very rare genetic syndrome - there have only been 50 cases reported and about 85% of those are in males. She has had 6 surgeries so far, and her 7th is scheduled for Feb 1st of this year for her right shoulder, right knee and right wrist.

I am lucky and blessed to have both of my daughters as they are loving, intelligent, beautiful little girls with a happiness that is more than contagious.

I hope to meet moms in here that I can learn from in regards to how to go about blazing the right paths to help my daughter have a normal everyday comfortable life:)

Nice to meet you:)

darbyakeep45
by Darby on Jan. 11, 2013 at 7:09 AM
1 mom liked this

Welcome Cindy!

Quoting tinkerbell_2334:

Hello,

My Name is Cindy I'm a mom of 3 girls Alexia who is 7 yrs, Emma who is 5 and Aliyana who is 16 months old. My youngest Aliyana was born 35 weeks early at 5 lbs, she was diagnosed with Microcephaly ( small head) she started having seizures at 12 months, we have seen a geneticist , we found out she has a deletion on 6q27, a rare chromosome disorder that pretty much explains the microcephaly, reflux, seizures, her low weight gain, feeding issues and developmental delays, it's so rare that there isn't many with this so it's just a waiting game to see how she develops. I'm glad I found this group. I hope to get to know some of you. 


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