What is the scariest thing about your child's diagnoses?

[Elyssa414]

What scares you the most?

[Punkslilncs]

They keep adding to it. So my son has Autism, but I thought my daughter would be different, apparently she is in a whole nother field and I just wanna lay on the floor kicking and screaming, while everyone tells me how strong I am and how much of a great mother I am.

[Elyssa414]

Totally understand that! None of us actually set out to be superwoman! Ugh

Quoting Punkslilncs:

They keep adding to it. So my son has Autism, but I thought my daughter would be different, apparently she is in a whole nother field and I just wanna lay on the floor kicking and screaming, while everyone tells me how strong I am and how much of a great mother I am.

[mandee1503]

How we don't know if he will make it to 10, or if something will change and he will have new symptoms like seizures. But the unknown is the greatest. Not knowing what the future holds all together for him.

[CameronsMommy23]

The fear that he may have seizures again someday and that he may never be an independent man able to live on his own. I won't live forever & I hope that his siblings will be there for him if need be.

[Elyssa414]

My biggest fear is that the last brain surgery will fail too, and the seizures will come back. I'm scared that we are out of options if that happens, and since they are progressive.... Ugh... Can't even type it. :(

[lifeisajoy]

My sons vulnerability but yet I have to make him as independent as possible so he has aides and lifeskill coaches and us--but the vulnerability does at times I do think about it and it scares me-also about his gastro issues and all of that-also trying to figure out who will care for my son if something happens to my husband and I--

[Elyssa414]

I totally hear you on all of that.

Quoting CameronsMommy23:

The fear that he may have seizures again someday and that he may never be an independent man able to live on his own. I won't live forever & I hope that his siblings will be there for him if need be.

[Alex825]

She will out live me, and I will have to find someone else care for her when I cant do it anymore.  No one loves better than mommy!  She is not medicaly involved. 

[sammygrl77]

That ds will start having seizures and I won't know what to do or it will make his brain damage worse. I'm sure when it comes to that time (if) we will be just fine, but the unknown is so scary to me.

[Elyssa414]

It is scary to think of someone else taking care of them! When they are grown up and still so vulnerable... *hugs*

Quoting Alex825:

She will out live me, and I will have to find someone else care for her when I cant do it anymore.  No one loves better than mommy!  She is not medicaly involved.