Hey everyone. Im Jacki, and the reason I joined this group is because my niece has retts syndrome. Her name is Jesley and she will be 3 in August. Are there any other mommies who have or know someone who has a child with this? They've known something was wrong with her since she was about 1. It was til about 2 weeks ago that they finally diagnosed her..properly. They thought it was autism at first, and then angelmon syndrome. I've read online, just some general information. But any other info from a mommy who knows first hand would be helpful. My sister in law is 26, and Jesley is her youngest of 3. The other 2 are boys, 5 &7. From what i've read so far...its not too common. About 1 in every 10-15,000 get it, and its mostly girls. Anyways. I am new to this site, but any info would be appreciated! thanks for taking the time to read.