But it's the exact same sound he used to make with each seizure. There was no Head drop. No arm throw. No confusion, drooling, seizure like activity at all.
He is absolutely not having seizures.
But that noise just brought it all crashing back! I'm having a hard time catching my breath... Trying to get rid of the edge of panic in my stomach.
I'm so freaking damaged. This is beyond ridiculous! He's fine. I KNOW THAT.
You would think after nearly 28 months since his last brain surgery, my PTSD would calm down a little! But no... My kid breaths in too quickly, and I'm going to spend the rest of the day on the verge of a panic attack! Ugh..,, lol
Anyone else out there as damaged as me?
Totally understand!! My DD has a severe heart condition requiring 3 surgeries by the age of 3. She has had one so far and her heart also is out of rhythm and she can go into episodes where her heart is out of control and dangerous to her. She has these times where she breaths loud and weird, almost like a hiccup sound but she is breathing. She did this in her sleep like last week and i have not been able to sleep sense. I am so scared and worried and the cardiologist say its nothing but still. She use to throw up real bad in the hospital and now its all coming back to me, just like you, and i cant sleep at night because I'm afraid as soon as i do , she will choke or wont be able to breath and i wont get to her in time. I totally understand your fear.
Hugs. I know when I watch my kiddo having a tic it kills me that I can't help him.
It wasn't seizures for me, but asthma attacks that had him turning blue. His asthma has been well controlled for almost 3 years now and I still find myself listening for his breath at night, and having to fight with myself when he starts panting during soccer. At the first cough, I get tense.
I think this is normal. Hopefully it fades with time.
What about your kiddo makes you smile?
How long did it take to get a diagnosis for your SN child?
- Elyssa414
on May. 3, 2012 at 12:23 PM