I got some pretty awesome news yesterday.
I went to Bradley's CF appointment yesterday. I found out that he is pancreatic sufficient which is awesomeness! And that the kind of CF that he has wont loose quite as much salt. Im not sure what kind of mutation it is yet they have to do a even broader search to figure that out. I know that whatever one it is its in less than 3% of CF patients. And one of those mutaions in that 3 percentile can be treated with a pill. Im so happy I don't know what to do with myself! Though he still has CF and he still needs to do certain things and have to be careful, this is pretty wonderful news.
Posted by
on May. 3, 2012 at 1:53 PM
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on May. 5, 2012 at 12:59 AM
That's excellent news! Anything positive with CF is always great to hear! My dd has CF too.
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What about your kiddo makes you smile?
How long did it take to get a diagnosis for your SN child?
- bmlcr
on May. 3, 2012 at 1:53 PM