It doesn't rain here, we get hurricanes apparently
We just got home! Dh is working 14hr days all weekend. Now the house is trashed and I'm alone! I'm afraid to leave the house but afraid to go back (I'm at my MILs).
Then for Ty's appt they said he may be gaining weight but they believe he's malnourished. That his body has never gotten the proper nutrients because of medical issues left untreated (due to drs not listening to me), food allergies, and then behavioral issues as a result of everything else. He'll have his tube for at least 2yrs, if he has mito it will be lifelong. In possibly 6 months they will put him in intensive feeding rehab. Til then he can eat if he wants but majority of nutrition is coming from tube and formula. They're getting with a genetic dr at the hospital to get us in and speed up the testing. Then urology tests will provide more answers to whether it's his gut and bladder or possibly a blockage in his uretha (I think thats it? The tube from bladder to opening?) or whatever else. But for now the dangerous/really scary stuff is ruled out. So there's my day