Sometimes I wonder--

[lifeisajoy]

I am hoping people understand--but I don't think they do--but I am hoping especially the people close do to me

I do feel they know the joy my boy brings to everyone!

But do they know my boy gets sad?  Do they know my boy has pain?  Do they know that it takes at least 1.5 hours to get my boy ready in the am --and do they really understand how that is?  Do they know my boy wants to just go and run in the field but yet his wheelchair gets stuck in the mud and he can't really be left alone for he don't understand dangers?  Do they know that my boy wants to be independent in so many ways and he sure tries but he will always need help--I think they understand that--but I don't know how fully--Somedays are harder than others for me--I guess today is one of those days--  Do they know that when my boy drops to his knees standing up--he don't really know the dangers to him and to me (or whoever is caring for him)  Do they really understanding my boy tries and tries to talk--and he never give ups but I think somedays he just wants to spirt it all out--Do they really know my boy has tons and tons of patience but somedays it don't look like it--but what if they had to go through what he goes through everyday?  Do they understand that my boys GI issues are extremely painful and I think embarrassing for him--I think they may understand that a little but not a lot--

Sorry about the semi-sad post--but I just had to write this out--He is a happy boy most of the time but he has feelings too and though may be special I think he understands--somewhat--

Thanks for listening-

[sammygrl77]

(((hugs)))
I get what you are saying. I think my boy is the same, just a younger version.

[lifeisajoy]

Thanks Sandra!!  Also I feel (including me--I am guilty of it) need to really show him patience--for people need to stop and think-why is he doing what he is doing (I do really try but somedays or moments I may be tired-I think just like any other mom here)

Quoting sammygrl77:

(((hugs)))
I get what you are saying. I think my boy is the same, just a younger version.

[sammygrl77]

Me too. Its impossible to be constantly a saint. We do the best we can.

Quoting lifeisajoy:

Thanks Sandra!!  Also I feel (including me--I am guilty of it) need to really show him patience--for people need to stop and think-why is he doing what he is doing (I do really try but somedays or moments I may be tired-I think just like any other mom here)

Quoting sammygrl77:

(((hugs)))

I get what you are saying. I think my boy is the same, just a younger version.

[lifeisajoy]

So True!! Okay you made me feel better Sandra--off to work I go--

Quoting sammygrl77:

Me too. Its impossible to be constantly a saint. We do the best we can.

Quoting lifeisajoy:

Thanks Sandra!!  Also I feel (including me--I am guilty of it) need to really show him patience--for people need to stop and think-why is he doing what he is doing (I do really try but somedays or moments I may be tired-I think just like any other mom here)

Quoting sammygrl77:

(((hugs)))

I get what you are saying. I think my boy is the same, just a younger version.

[natesmom1228]

HUGS!!!

[Pukalani79]

 ((HUGS)) People may be not understand, but you do.  And that's part of what makes you a great mom

[Mipsy]

*hugs* no one truly understands until they are in that situation themselves. I have found trying to explain anything like that to others is like talking a brick wall.

[CameronsMommy23]

*big hugs*

[jjamom]

I think most people don't truly know or understand. I understand where you are coming from, I think we all understand because although our situations are all different, we all intimately know the struggles our children face on a daily basis. We know what they feel and what they wish and what they need. I wish others could be more empathetic sometimes, but I just don't think they really stop and think about it.

[mandee1503]

*hugs* :)