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Raising Special Needs Kids Raising Special Needs Kids

Do I say anything? Update in Red

Posted by on May. 15, 2012 at 11:22 PM
  • 11 Replies

 Recently my DH and  I have noticed that Lindsay is behind where most 7 year old girls are both mentally and in maturity.  She didnt speak clearly until she was 5 but now she talks really well... but there are little things... she'll be in the middle of something and will drop and forget everything to chase a butterfly.  I'm trying to think of other specific things and I really can't... her understanding of things is...young.  Her sister is 8 and comparing Emily at 7 and Lindsay now... there's a huge difference!  I'm not explaining this very well and I don't really know how to describe what we're seeing.  She's had a lot of trouble ever since she was born - RSV/pneumonia, weak immune system (constant colds, flu, sinus infections, strep throat, scarlet fever even), now she has chronic abdominal pain.  I talked to one of the local schools for help because she'll forget or mix up words but they really couldn't offer me any specific help and were more interested in getting her back in public school than anything (which she can't do because of her pain and lack of ability to concentrate).  Part of me wants to say something to her doctor, but since I can't really describe it to you, there's no way I'd be able to describe it to her. Part of me thinks we should just slow down with her and let them deal with finding the cause/cure for her pain before moving on to other problems... I don't know... if you can follow any of this, and actually understand what I'm trying to say (I'm not sure I can!) what do you think?

Today I almost couldn't let her out of my sight, at least when we weren't home.  She'd be next to me and then she'd be gone.  She'd just wander away to something that caught her eye/attention.   She knows she's supposed to stay with me but its like it just doesn't register.  It's so bizarre.  I'll tell her one thing and she'll be okay for a little bit then she'll go right back to doing whatever she'd gotten in trouble for earlier.  So frustrating.  I don't know if this is just a phase, or what... I don't want to be *that parent* who freaks out over every little thing but this is...weird.

by on May. 15, 2012 at 11:22 PM
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Replies (1-10):
mandee1503
by Amanda on May. 16, 2012 at 1:15 AM
I would bring it up. In case she needs speech therapy or something the sooner she gets in the sooner things will work.
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darbyakeep45
by Darby on May. 16, 2012 at 5:18 AM

I agree with Amanda....never hurts to bring it up..she may need some therapy and such in the meantime.  Good luck!

natesmom1228
by on May. 16, 2012 at 9:57 AM
I agree you should ask about it.
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girl_incognito
by on May. 16, 2012 at 3:00 PM

I would bring it up. Make sure you let them know you are very concerned and would like psychological evaluation done. If you have trouble remembering everything that you are concerned with, write it down. You did a pretty good job just now explaining the problem. Seems to me you feel she has trouble focusing, expressing herself verbally, and has a history of speech problems. When you see a specialist they give forms to fill out that will help you, help them pinpoint her problem.

Pukalani79
by on May. 16, 2012 at 11:47 PM

 Thank you.  I'll call her doctor tomorrow and see if I can't get her in

darbyakeep45
by Darby on May. 17, 2012 at 4:58 AM
1 mom liked this

Trust your gut here mama...tell the doctor!

FoxxyMama1
by Member on May. 17, 2012 at 8:17 AM

It really sounds like a full physical workup is in order.  Also, I'd ask for a referral to see a pediatric neurologist.  Not to scare you but seizures don't always involve someone falling to the floor and shaking.  My son's pediatrician told me when in medical school, he saw a film on seizures and one person's seizure was he'd get up, open the window, close it and then sit down.  He'd keep doing it over and over until the seizure was over.  The chronic stomach pain is also concerning.  Follow your instincts Mom, they will never steer you wrong.

i.heart.myboys
by on May. 17, 2012 at 8:54 AM

Oh wow yeah I would talk to someone about this. Maybe a doctor as well? Maybe they can give you some tips?

amazontmomma
by on May. 17, 2012 at 4:44 PM

 You just described my 8 year old, he does the same things & he is isfunctioning autistic. he also did not speak until 5 , his ability to process what we say is difficult as well and can not stay on task.  not saying your young one is at all but I would see if you can get her in for an evaluation with your dr or the local children's hospital should have a child development center where they do it.  It takes a while to get in as they tend to see children ages 5 and younger quicker but you need to get referred & get on the waiting list. Things that help our son, are when I give him instructions I keep it simple, We give no more that 2 steps at a time to make sure it is understood. I have has the wandering issue as well we have a rule now that ours is older ha has to keep his hand on the stroller with me we also have a wrist lead that attaches to my wrist & our child's I do not have to use it often but it is helpful in crowded places or near really busy streets ect. might sound extreme but we have had our kids run into the street in front of cars before we could stop them & it is scary.  A simple pressure vest also makes him feel more grounded and he is able to concentrate(stay on task) and seems to really understand my directions more when he is wearing it some days he wears it under his clothing for school. feel free to message me if you like and I can give you other ideas you might try while you are waiting for aptments that might help out. :)

Pukalani79
by on May. 17, 2012 at 5:14 PM

We've always had to do this... wow.  I hadn't considered autism.  Thank you for the information.

Quoting amazontmomma:

when I give him instructions I keep it simple, We give no more that 2 steps at a time to make sure it is understood.

 

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