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Raising Special Needs Kids Raising Special Needs Kids

Neuro appt update

Posted by on May. 23, 2012 at 10:37 PM
  • 15 Replies
Ok I've had an extremely bad day today. Too much to event vent about and my mom is at work so I can't call and talk to her and feel better til tomorrow.

Long story short: switching to keppra, 2ml twice a day. Weaning off trileptal. It's gonna take a few months to do. Dr thinks we may be having new seizures but his worry is the grand mals and SUDEP. Once again he told us his biggest fear right now is Ty dying in his sleep from a seizure. The best way to prevent it is seizure control.

So there it is for the 2nd time, black and white, punch to the face.
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by on May. 23, 2012 at 10:37 PM
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Replies (1-10):
lifeisajoy
by on May. 23, 2012 at 10:43 PM

Huge hugs Chelle!!!  Hope the seizure med switch works well--

mom4fun695
by on May. 23, 2012 at 10:59 PM

(( hugs ))

mandee1503
by Amanda on May. 24, 2012 at 1:06 AM

*hugs* I hope the medicine works!

Reinke_Mommy
by on May. 24, 2012 at 1:30 AM

hugs

RobinChristine
by on May. 24, 2012 at 2:08 AM

I hope this works for Ty.

Thor and I have  both take keppra,I have been seizure free 6 years,Thor almost 2 years

MauiStylinMommy
by Member on May. 24, 2012 at 3:55 AM
Same here for my girl Elena..she's on Keppra..Topamax..Clobazam trying to get these seizures under control now for 2 years..really don't ever want to think about SUDEP ever happening to any child! *hugs*
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darbyakeep45
by Darby on May. 24, 2012 at 6:34 AM

Oh mama...I'm sorry to hear all of this...hope you got some sleep last night!  HUGS!

FoxxyMama1
by Member on May. 24, 2012 at 7:45 AM

I hope the Keppra works for him.  My husband takes it with good results.  So scary!

Mipsy
by Chelle on May. 24, 2012 at 10:26 AM
Thanks gals. I did get some sleep.
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myfirstborn04
by on May. 24, 2012 at 10:36 AM
Hugz-sorry that does sound rough. Hang in there. Bless you and ty. Hope things get better.
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