I have recently got in touch with my uncle whim i haven't seen or heard from since i was 5 or 6 years old. Long story short my dad didn't keep in touch with his side of the family. Well i learned that two of my cousins who are 12 now have angelman syndrome. My uncle was told that they would never walk and be on feeding tubes all there lives. Dr.s told him to pu them in a home. My uncle is a great father. He said no i will raise them and they will succeed. My cousins learned how to walk and can say a few words. My uncle had become an advocate for his boys and has done lots of public speaking. He pushed for a special needs playground to be built in his sons school and one in the city. I can not believe i was so out of touch with such a great man. I am just learning about this disorder and am hoping to learn all i can. I hear its a neurological disdorder often people with this disorder get mistaken for autism or cp. It causes lots of delays in physical and mental. It causes seizures. Well atleadt my cousin have seizures. I am hoping to learn more. Does anyone here have kids with this disorder and can tell me more?
on Jul. 21, 2012 at 9:26 AM