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Medication fears... +update +update again

Posted by on Aug. 16, 2012 at 1:23 PM
  • 23 Replies

My son has a sensory processing disorder, severe allergies, and reactive airways (i say asthma, doc says not old enough, but that's another story for another day). 

Anyway his allergies have been getting progressively worse as he gets older. He started out just needing albuterol breathing treatments during allergy season, and benedryl on super bad days (he'd have hives). Then it started to turn into a daily thing when he got to be 2 and albuterol helped some, but the hives were daily. So we added clariton. So he takes clariton in the morning, abuterol breathing treatments if he gets too wheezy or out of breath. Which hives were gone, maybe he'd get them 1 time a month, and respitory symptoms were way down and under control. Last few weeks however (he's 1 month short of 3), he's always got a runny nose despite being on clariton, wheezy if he isn't sitting up so lots of breathing treatments, and even with the treatments he has to sleep propped up or he wheezy so bad I'm scared he'll stop breathing. I've been watching him close for respitory distress (he has had that alot, been to the ER numerous times in his life because of it), so I'm not sleeping much....nights have been the worst for him. So I took him to the doctor again. Doctor added singular for night time. So now he's suppose to take clariton in the morning, singular at night, and albuterol as needed. I'm starting to feel like I'm drugging up my son.... 

Also my concern with singular is I've read it can cause behavioral agitation, severe aggression, hallucinations, and night-terrors in children. My son's sensory processing disorder causes to already have lots of agitation, aggression, and some night-terrors (though we are down to 1-2 night terrors a month). I'm nervous about giving him a medication that could make his disorder worse, I under the benefits at this point in time seem to out weigh the potential negative....as breathing is more important than behavioral/psychological concerns. But still... I addressed my concerns with my doctor and he assured me those side effects are very rare and for most kids there is no side effects. He said if my son demonstrated any to call him and we'd find something to replace singular. He also said if my son's allergies didn't improve within the next 3 days we'd replace singular. He says he feels my son is a good canidate for singular and it would greatly benefit him, and does not predict my son will have any negative reactions to the medicaiton.... But I'm a mommy, and nervous. Reassure me pleae??? Also how on earth can I tell if my highly imaginative little boy is hallucinating? He'll be starting this medication tonight before bed. 


**UPDATE*** Night one on Singular went very  smoothly, no nightmares, he slept much better thanks to the fact he could breath. Mommy on the other hand didn't sleep so well, mommy had the nightmares...lol... worried pregnant Mommy = lots of crazy nightmares. 

**UPDATE #2**** Night two smooth as well.

Posted by on Aug. 16, 2012 at 1:23 PM
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CameronsMommy23
by Amber W on Aug. 16, 2012 at 2:37 PM
I'm not sure how you can tell the difference between his imagination and side effects of the Singular. Maybe if he's having more nightmares then normal? I'd ask his pediatrician what to watch for. If he experiences anything you can take him right back off the medicine. Good luck!
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jjamom
by Michele on Aug. 16, 2012 at 2:55 PM
1 mom liked this
My son took Singulair for a while and had no adverse side effects at all. He took it between ages 2 and 3, and in conjunction with several other meds, including albuterol, pulmicort and nasacort. He has never had any of the other issues you mention though, so I understand your concern. But, for my son, there were no side effects. Good luck. I hope it helps him!
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sahm2shaina
by Member on Aug. 16, 2012 at 7:03 PM
Have you taken him to an allergist or is his normal ped giving the meds?
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Nicholy10
by Member on Aug. 16, 2012 at 7:29 PM

I took him to a specialist, and his normal doctor is following the recommendations of the specialist. 

Quoting sahm2shaina:

Have you taken him to an allergist or is his normal ped giving the meds?


JasonsMom2007
by Member on Aug. 16, 2012 at 7:44 PM
Oh trust me, she would be able to tell. My son was one of the kids who reacted to it. He was older (4) but has a hard time telling me what is wrong.
it was like he was a totally different child. He also has spd and possible asthma on top of anxiety disorder.
he clung to me for 2 days straight. He would look around constantly watching everything. Forget night terrors. I would have preferred those. He was too terrified to even lay down in his bed. Eventually he told me that there was a stranger who knew his name cutting a hole through his roof with a big chainsaw that cut through his feet. The stranger would call his name and let bugs in (hes always struggled with bug anxiety) this from a kid who was too afraid of movies to watch mild ones like toy story. Hes never seen or heard of anything like this and he was wide awake.
2 days after taking him off he was better.
flonaise has done great things for him. Xyrtec used to work but his body developed an immunity to it. He takes xyal when needed now. We tried Allegra but it also gave him anxiety.
even after all of that I would try it if I were you. The effects were not long lasting and it can really help some kids.
I hope that helps!


Quoting CameronsMommy23:

I'm not sure how you can tell the difference between his imagination and side effects of the Singular. Maybe if he's having more nightmares then normal? I'd ask his pediatrician what to watch for. If he experiences anything you can take him right back off the medicine. Good luck!

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Nicholy10
by Member on Aug. 16, 2012 at 8:10 PM

Scary.... I'll let you know how it goes. 

Quoting JasonsMom2007:

Oh trust me, she would be able to tell. My son was one of the kids who reacted to it. He was older (4) but has a hard time telling me what is wrong.
it was like he was a totally different child. He also has spd and possible asthma on top of anxiety disorder.
he clung to me for 2 days straight. He would look around constantly watching everything. Forget night terrors. I would have preferred those. He was too terrified to even lay down in his bed. Eventually he told me that there was a stranger who knew his name cutting a hole through his roof with a big chainsaw that cut through his feet. The stranger would call his name and let bugs in (hes always struggled with bug anxiety) this from a kid who was too afraid of movies to watch mild ones like toy story. Hes never seen or heard of anything like this and he was wide awake.
2 days after taking him off he was better.
flonaise has done great things for him. Xyrtec used to work but his body developed an immunity to it. He takes xyal when needed now. We tried Allegra but it also gave him anxiety.
even after all of that I would try it if I were you. The effects were not long lasting and it can really help some kids.
I hope that helps!


Quoting CameronsMommy23:

I'm not sure how you can tell the difference between his imagination and side effects of the Singular. Maybe if he's having more nightmares then normal? I'd ask his pediatrician what to watch for. If he experiences anything you can take him right back off the medicine. Good luck!


T-HoneyLuv
by Bronze Member on Aug. 16, 2012 at 8:29 PM
DS was on Claritin for a while but it stopped working for him. He has been on Singulair for about a year with no side effects.
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girl_incognito
by Bronze Member on Aug. 17, 2012 at 8:46 AM

My son has SPD among other things, he along with my NT son took singular when they were small, we had NO problems. Its a good med.

My middle child also is suspected to have asthma (being told reactive airway restriction right now) He has been put on an inhaled steriod for 3 months... along with albuterol, have they tried an inhaled steriod? 

Nicholy10
by Member on Aug. 17, 2012 at 9:15 AM

No he has not been given an inhaled steriod. When he gets bronchitis, pnuemonia, or other respitory virus or just in respitory distress he is given a liquid steriod. Is he old enough for an inhaled steriod??

Quoting girl_incognito:

My son has SPD among other things, he along with my NT son took singular when they were small, we had NO problems. Its a good med.

My middle child also is suspected to have asthma (being told reactive airway restriction right now) He has been put on an inhaled steriod for 3 months... along with albuterol, have they tried an inhaled steriod? 


girl_incognito
by Bronze Member on Aug. 17, 2012 at 9:41 AM

I know he is old enough for pulmicort... which is given via nebulizer, not sure about the inhaler type though

Quoting Nicholy10:

No he has not been given an inhaled steriod. When he gets bronchitis, pnuemonia, or other respitory virus or just in respitory distress he is given a liquid steriod. Is he old enough for an inhaled steriod??

Quoting girl_incognito:

My son has SPD among other things, he along with my NT son took singular when they were small, we had NO problems. Its a good med.

My middle child also is suspected to have asthma (being told reactive airway restriction right now) He has been put on an inhaled steriod for 3 months... along with albuterol, have they tried an inhaled steriod? 



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