I've been doing this now for ten months as a single parent and I feel drained in all areas. It was hard to all of a sudden be thrown too into the medical field with all These terms and procedures. We see cardiology, endocrinology, ophthalmology, neurology, GI and his regular Ped. We have OT and PT weekly and visual therapy biweekly.
This is not my only hardship. I've got an unusual situation I feel. I'm Native American. I live with my grandparents on the reservation. I thought this would be a good idea for two reasons-- I could use the support and it's important to me that Baby learns our traditions and language( English is my second) so he always knows where we come from. There are also 2 other adults 1 teen and other child living here. Well its been far from good for other reasons. My family has NO idea what it's like to go through what i do because they dont have To deal with it. Noone tries to understand. Looking at baby you'd never be able to tell anything wasn't right( unless you have a trained eye) so they don't think it's a big deal. they don t realize how hard I've worked to get him this far and keep him alive.
I'm also expected to do a lot as far as keeping the house clean and cooking for this family of 8.I do it everyday. I get no break because Rez life is always so busy. Noone between tries to offer help either. I have to wait til someone's in a good mood To see if they'll watch him long enough for me to shower. Did I mention he doesn't always like to be out down?? The first months were the longest. When I couldn't put him down to make a bottle or change him with out him crying til he changed color. So obviously I haven't had ANY other kind of break because no one else wants to try to deal with it. We qualified for respite . as of this month I'm now looking for a caregiver that's gonnaa work for us. I'm getting better in all areas of this but I still can't catch a break.
So how do u deal? What's your situation? Do you have anything u wanna bitchout? What do you do to make it work and be easier for you??