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Mystery Rash. Any thought?

Posted by on Oct. 4, 2012 at 11:07 PM
  • 17 Replies
My 10 month old daughter was recently diagnosed with a rare genetic condition called Sotos Sundrome. 5 months ago she had a virus and began breaking out with a red blotchy rash during every bottle. The virus passed but the rash has yet to stop. It covers her head, body and sometimes legs and arms. This only happens when she drinks a bottle...no matter what liquid. It does not happen when she drinks from a cup. It is not an allergy to the type of bottle/nipple as we have tried every type available. We see several types of doctors/specialists because of the Sotos but all have said they have no idea what is causing the rash and have never heard of this happening before. Has anyone ever experienced anything similar to this? It does not hurt, burn or itch and she doesnt seem to be in any type of distress, just covered in bright red blotches..
by on Oct. 4, 2012 at 11:07 PM
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Replies (1-10):
darbyakeep45
by Darby on Oct. 5, 2012 at 6:18 AM

Welcome to the group!  I don't have any experience with what you're talking about but the ladies in our group are wonderful and I bet they will have some ideas...good luck!

jjamom
by Michele on Oct. 5, 2012 at 9:43 AM
Huh, that is quite odd! I was going to question whether there is an allergy to the plastics used in the nipples (like a latex allergy, or whatever material they make nipples out of) since it doesn't happen with a cup and happens with every liquid (which would rule out an allergy to the formula). I hope you get some answers soon. Is she able to use a cup well enough to give up the bottle yet? I know 10 mos is pretty young. You might want to check out talk tools.com as they have a variety of early training cups that may help the transition go easier.
ashleywheeler13
by Member on Oct. 5, 2012 at 9:59 AM
I know this sounds werid but does she break out into sweat when she taking a bottle? Her sweat can cause the break out. I know when lily get overwork she breaks out in blotches
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sammygrl77
by on Oct. 5, 2012 at 10:26 AM
Very odd. I have no idea what that could be. I hope you can find answers.
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grammajuie
by Member on Oct. 5, 2012 at 12:38 PM

My guess would be that the exertion from sucking causes it.  Does she sweat when she exerts in other ways?  Really stumped.  Good Luck.

Quoting ashleywheeler13:

I know this sounds werid but does she break out into sweat when she taking a bottle? Her sweat can cause the break out. I know when lily get overwork she breaks out in blotches


MelThompson
by on Oct. 5, 2012 at 2:45 PM
Thanks y'all! She isnt doing well enough with a cup for me to take the bottle away. She doesnt sweat from eating. The Sotos causes excessive sweating but she doesnt get the rash when she sweats. Its the craziest thing. The allergist says the response happens too quickly after beginning to feed for it to be an allergy. I have been told sometimes babies just get weird rashes but that answer isnt cutting it anymore. I worry that whatever the reaction is could progress and become something more severe with time.
jjamom
by Michele on Oct. 5, 2012 at 3:06 PM
How long does the rash last?
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i.heart.myboys
by on Oct. 5, 2012 at 3:43 PM
Welcome to the group. Has your child been on antibiotics. Austin has something similar when he was on antibiotics and they call it redman syndrome.
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andyroosmama
by on Oct. 5, 2012 at 8:34 PM
1 mom liked this

 Is the nipple on the bottle latex or silicone? If it is latex, it could be a latex allergy, and if so, there will be an allergy to bananas

 

willysmama
by on Oct. 5, 2012 at 10:40 PM

could the flow of the nipple be to slow? I know when my son was younger a few times he would try and suck on the nipple and would get blotchy from his anger cause he was having a hard time getting enough out of the nipple. When the nipple was to slow in flow he would always collapse the nipple from sucking to hard.

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