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Raising Special Needs Kids Raising Special Needs Kids
My 10 month old daughter was recently diagnosed with a rare genetic condition called Sotos Sundrome. 5 months ago she had a virus and began breaking out with a red blotchy rash during every bottle. The virus passed but the rash has yet to stop. It covers her head, body and sometimes legs and arms. This only happens when she drinks a bottle...no matter what liquid. It does not happen when she drinks from a cup. It is not an allergy to the type of bottle/nipple as we have tried every type available. We see several types of doctors/specialists because of the Sotos but all have said they have no idea what is causing the rash and have never heard of this happening before. Has anyone ever experienced anything similar to this? It does not hurt, burn or itch and she doesnt seem to be in any type of distress, just covered in bright red blotches..
by on Oct. 4, 2012 at 11:07 PM
Replies (11-17):
HairClipQueen
by Member on Oct. 6, 2012 at 7:54 AM

 Just a thought here.  Could it be the soap you use to wash the nipple?  perhaps there is a bit left on the nipple or around the nipple or bottle. 

MelThompson
by on Oct. 6, 2012 at 10:37 AM
We changed soaps and I also tried using no soap and boiling the bottles. I also washed them in filtered water.
MelThompson
by on Oct. 6, 2012 at 10:39 AM
Quoting jjamom:

How long does the rash last?



15 to 20 minutes.
MelThompson
by on Oct. 6, 2012 at 10:43 AM
Quoting i.heart.myboys:

Welcome to the group. Has your child been on antibiotics. Austin has something similar when he was on antibiotics and they call it redman syndrome.



She has. The rash has been constant since May. It has been Weeks since she had . They are completely out of her system now.
MelThompson
by on Oct. 6, 2012 at 10:45 AM
Quoting andyroosmama:

 Is the nipple on the bottle latex or silicone? If it is latex, it could be a latex allergy, and if so, there will be an allergy to bananas


 




We have tried both. The allergist said she is not allergic to either.
MelThompson
by on Oct. 6, 2012 at 10:49 AM
Quoting willysmama:

could the flow of the nipple be to slow? I know when my son was younger a few times he would try and suck on the nipple and would get blotchy from his anger cause he was having a hard time getting enough out of the nipple. When the nipple was to slow in flow he would always collapse the nipple from sucking to hard.



Thats a good thought. Since she has problems with feeding/tiredness from from sicking I use nipples that the formula comes out of without her even sucking. But I'll check this out since she has gotten older this could be part of it.
mom2zachy122
by on Oct. 6, 2012 at 12:20 PM

Wow, I'm stumped and haven't heard of anything like that....

If you want to go with transition to cup, here is a link to adaptive dining equipment:

http://www.cwimedical.com/Products/home-care-caregiver/aids-for-daily-living/adaptive-dining-products?gclid=CN2n6N_k7LICFQme4Aodv28Avg

They specialize in specially adapted sippy cups/drinking utensils to help special needs children transition from dependent feeding to more independent feeding. 

Good luck! 

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