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Raising Special Needs Kids Raising Special Needs Kids

to be PDD or not to be PDD...that is the question :)

Posted by on Oct. 6, 2012 at 12:40 PM
  • 14 Replies

So, we have some pretty conflicting reports on DS lately.  The pedi nuero sees definite signs of spectrum disorder....she is leaning toward PDD-NOS.  She's talking about needing intense social therapy and a good possibility of self-contained classroom or even tranfer out of district to a special school.  Teachers don't see it; I see some things, but they are explainable through other dxs (dev delay, ADHD). 

Even though I work in the field, I'm well aware of the dangers of trying to diagnose your own kid.  So, I scheduled an appt with a pedi psychologist to get a second opinion (as well as to help DS cope with some sensory/anxiety issues).  DS was FABULOUS for the psych visit.  Engaged, talkative, eye contact, the whole shebang.  So, of course, the pedi psych doesn't see anything but the immaturity/delayed development.

So, I'm happy at how well DS is doing with extra support at school and some social skills training we have done with him on the side, but a little confubled as to how to process exactly what is going on with him, what it means for us as parents and for him as an individual.

I guess I just take my own advice and take it one day at a time.  Worry about treating the deficits and not worry about what to call it.

Just processing.....that's what's so awesome about this group.  I can just plunk down my random thoughts and y'all just get it.  ((((HUGS)))))

:)

by on Oct. 6, 2012 at 12:40 PM
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Replies (1-10):
strategic406
by on Oct. 6, 2012 at 1:39 PM
2 moms liked this

My daughter was labeled PDD with CAPD and SI disorder. It was heartbreaking and the prognosis was so grim. And of course the schools want to label everyone.  I decided that there would be no labeling for my child and that she was a unique individual with her own way of learning. I even told the admin as much during those painful IEP meetings where you get to find out just how much of an "outsider" and "failure" they consider your precious one.

But...she ended up graduating an honors student and is now in a good college.

So what I did all those years in between was aggressive dietary intervention, some OT, a wonderful but radical listening program done by specialists that totally changed her verbal skills 360 degrees, vision therapy (the way the brain processes what it views is also part of PDD) but mostly I believed that she was already successful.  She is a natural athlete and played sports so that was also helpful (though she couldn't understand the coach's verbal instructions so didn't get to play as much). We took things day by day and really tried to block all negative reports and forecasts.

I also never, never told my DD that she was learning disabled.  I wanted her to feel that she was limitless in her abilities despite the current situation (and I also looked at it as a just a "situation") and she continued to persevere. Then when she was in middle school an evil sp ed teacher made fun of her and called her learning disabled. From then on my DD gave up and continued in a downward academic spiral until--

I told her that learning disabled was a only a label used by schools for their admin purposes. She had to be the catalyst for her own destiny and that everyone had something to overcome in their lives. She read books about people (like Elie Wiesel) who prevailed over unbeatable odds. This is part of how my DD turned her future into a path of hope and fulfillment--not a beaten dirt road with a big Dead End sign.

tracy@creatingnewwaves.com

darbyakeep45
by Darby on Oct. 6, 2012 at 4:30 PM

Yep, I totally get it!  You're right mama...just take things one day at a time and you'll figure it out!  Glad you got a second opinion!

i.heart.myboys
by on Oct. 7, 2012 at 10:09 AM


Quoting darbyakeep45:

Yep, I totally get it!  You're right mama...just take things one day at a time and you'll figure it out!  Glad you got a second opinion!

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mom2zachy122
by on Oct. 7, 2012 at 9:26 PM

Thanks, everyone! Like I said, you guys "get it" ;)


 

Quote:

And of course the schools want to label everyone


LOL!  That's funny.  In the 10 years or so I've worked in the schools, all I hear is complaints from parents about how we don't do enough for their kids and your experience is the opposite.  LIfe is weird!

MomOfOneCoolKid
by Member on Oct. 8, 2012 at 5:40 PM

Even though I work in the field, I'm well aware of the dangers of trying to diagnose your own kid.

>>> hmm, i'm not aware... what do you mean?

.......

Other than that, yup, I get it ;)

MomOfOneCoolKid
by Member on Oct. 8, 2012 at 5:45 PM


Quoting strategic406:

You are AWESOME!

 

Thank you for sharing this! It was so helpful!

lifeisajoy
by on Oct. 8, 2012 at 6:22 PM

Hugs--yep one day at a time-yes I work in the field also and so right not to diagnose own kids--I had the same issue of it was disruptive disorder NOS (which he was diagnoses that ) and/or PTSD--His workers and psychologist were excellent so like you said just work with it and not what it is called-and now after 7 yrs of psychologist and behavior therapist he no longer has them (been 1 business day since he has not had it-well actually today first business day) Woohoo-we celebrate the little things which are big things to our kids and us

Take Care!

mom2zachy122
by on Oct. 8, 2012 at 6:38 PM


Quoting lifeisajoy:

Hugs--yep one day at a time-yes I work in the field also and so right not to diagnose own kids--I had the same issue of it was disruptive disorder NOS (which he was diagnoses that ) and/or PTSD--His workers and psychologist were excellent so like you said just work with it and not what it is called-and now after 7 yrs of psychologist and behavior therapist he no longer has them (been 1 business day since he has not had it-well actually today first business day) Woohoo-we celebrate the little things which are big things to our kids and us

Take Care!


Yay!!

mom2zachy122
by on Oct. 8, 2012 at 6:40 PM


 

Quote:

>>> hmm, i'm not aware... what do you mean?

Diagnosis that is as accurate as possible requires three things.....education, experience and objectivity.  I have the education, I have the experience.  As a mother, the subjectivity is questionable.

Lilindian
by on Oct. 9, 2012 at 10:14 PM

That's what I have to do. One day at a time. My son has PDD,ODD,ADHD, and we suspect dislacsia (spell check me please ). So that's all I can do is roll with the punches. HUGS to you bothboy kissing mom

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