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Raising Special Needs Kids Raising Special Needs Kids

Outside the home that is:)  

I'm just curious how you ladies that do work manage to do it all!  I started working part time back in July, and I only work during his therapy and school hours, but it's just gotten to be so much and so stressful that I'm leaving my job...my last day is next Wednesday.  I'm not very happy having to run around all the time, being stressed all the time, tired all the time, lacking severely in patience with my son and my husband!  It's just hard!  I thought I was ready to go back to work, but I'm obviously not.  Maybe when Brady goes to school fulltime but not yet...

Just wanted to know what your thoughts are:)  Thanks!

by on Oct. 12, 2012 at 8:58 AM
Replies (21-30):
mom2zachy122
by on Oct. 12, 2012 at 9:05 PM
2 moms liked this


Quoting myfirstborn04:

you are doing your best and that's all that matters. your your child's hero! you just keep your faith and take it one day at a time! you are awesome mom, and woman! :)


Quoting mom2zachy122:

%Unfortunately, yes.  I work a full-time job and I do homecares on the side every week. I know that some people don't want to be a SAHM.  I always wanted to and feel it's better for my child.  I tried very, very hard to make it work, but once it became clear that Zach wasn't going to be able to adjust to daycare, I knew I would have to be the breadwinner and go back to full-time work b/c my husband just wasn't going to be able to support us on his salary alone.  I am stresed, tired, and overwhelmed most of the time and I feel that it cheats my child of a lot that I think he should have and I want to do for him.  Not material things, but more parenting things.  Like a mom who has the energy to keep up with him, keeps a neat and organized home, is patient and energetic when he is home etc.


So, I'm not happy at all with the situation, but it is what it is and I work extra hard at being patient with him and doing things with him, even if it's "just' playing around the house.  When something needs to give, it's usually the housework or the laundry and then we just somehow catch up later on.  Better messy and in sweats than neglected :)



Oh wow ;)  Thank you so much.  It's amazing how much it helps to get words of support :)

 

mom2zachy122
by on Oct. 12, 2012 at 9:14 PM


Quoting lifeisajoy:

I think we are in the same careers-you sound like I was now I just work very part time due to my own health and I also was the breadwinner and so financially some days I wish I could but everything else I love being home--

You are awesome!! Hang in there!! I remember feeling like that! 

Quoting mom2zachy122:

%Unfortunately, yes.  I work a full-time job and I do homecares on the side every week. I know that some people don't want to be a SAHM.  I always wanted to and feel it's better for my child.  I tried very, very hard to make it work, but once it became clear that Zach wasn't going to be able to adjust to daycare, I knew I would have to be the breadwinner and go back to full-time work b/c my husband just wasn't going to be able to support us on his salary alone.  I am stresed, tired, and overwhelmed most of the time and I feel that it cheats my child of a lot that I think he should have and I want to do for him.  Not material things, but more parenting things.  Like a mom who has the energy to keep up with him, keeps a neat and organized home, is patient and energetic when he is home etc.

So, I'm not happy at all with the situation, but it is what it is and I work extra hard at being patient with him and doing things with him, even if it's "just' playing around the house.  When something needs to give, it's usually the housework or the laundry and then we just somehow catch up later on.  Better messy and in sweats than neglected :)

 

Yes, if I remember correctly we have similar careers :)  Both are demanding and extend well beyond the typical 9-5 :)  It's definitely a challenge and I remember when we first came up against the "How are we going to make this work" of having a new infant.  I really got a giant wake-up call that no two families handle it the same.  It's difficult for 99% of people and each situation is unique.

I feel your pain.  We are just getting by.  In fact, with buying my husband a new used computer and taking paying out of pocket for taking Z to the psychologist (we didn't get reimbursed from the last visit before this visit came up), we ended up bouncing a check that we can't make good on now 'til Monday, which is the second paycheck of the month, but because the mortgage takes up most of that check, we'll be eating a lot of macaroni, I think!  We just run too close to the line and juggle bills and pay checks too much to be able to absorb a $40 miscalculation in our funds. :(

OTOH, it could be worse.  We could be unemployed.  We could lose the house.  DH has a steady, part-time job and they have been very consistent.  We'd be completely unable to continue living as we are if we lost his $400/month.  So, it is what it is.  I sure do wish that lottery number would come in, though :)

Siobhan69
by on Oct. 12, 2012 at 9:35 PM

Yes, I work full time. I am a director of finance at a wonderful non-profit organization. It's called Clearbrook and we provide services, work programs and housing for developmentally disabled children and adults. They of course are very understanding to my needs with my son who has PDD-NOS. I have been there for 7 years and I love it.

My husband and I are very fortunate that my parents take care of our ds and dd during the day. My ds attends and early childhood structured program for 5 hours a day 5 days a week so they are mainly taking care of our dd who is 10 months old.

Our ds will begin his ABA the end of this month but it will be on Saturday and Sunday to begin with for 3 hours each day and it is home based. I am very lucky to have the resources that I have through my work.

So it's not too tough for us but my heart goes out the all of the mothers who struggle with work and therapies each day. Hugs to each and everyone of you :-)

sammygrl77
by on Oct. 12, 2012 at 9:41 PM
1 mom liked this
I tried in the beginning. I got burnt out quickly with two babies waking up several times a night. Then with all tge therapies and doctors, I just couldn't juggle it all. I went down to part time and that was much better for all of us. Until I had to quit.

Now I can not work because of health reasons. I just got my approval for temporary SSDI. I hope to be working part time again eventually.
Posted on CafeMom Mobile
sammygrl77
by on Oct. 12, 2012 at 9:42 PM
Are you in the Chicagoland area?


Quoting Siobhan69:

Yes, I work full time. I am a director of finance at a wonderful non-profit organization. It's called Clearbrook and we provide services, work programs and housing for developmentally disabled children and adults. They of course are very understanding to my needs with my son who has PDD-NOS. I have been there for 7 years and I love it.


My husband and I are very fortunate that my parents take care of our ds and dd during the day. My ds attends and early childhood structured program for 5 hours a day 5 days a week so they are mainly taking care of our dd who is 10 months old.


Our ds will begin his ABA the end of this month but it will be on Saturday and Sunday to begin with for 3 hours each day and it is home based. I am very lucky to have the resources that I have through my work.


So it's not too tough for us but my heart goes out the all of the mothers who struggle with work and therapies each day. Hugs to each and everyone of you :-)


Posted on CafeMom Mobile
Siobhan69
by on Oct. 12, 2012 at 9:48 PM

 Yes, I am. Have you heard of Clearbrook?

Quoting sammygrl77:

Are you in the Chicagoland area?


Quoting Siobhan69:

Yes, I work full time. I am a director of finance at a wonderful non-profit organization. It's called Clearbrook and we provide services, work programs and housing for developmentally disabled children and adults. They of course are very understanding to my needs with my son who has PDD-NOS. I have been there for 7 years and I love it.


My husband and I are very fortunate that my parents take care of our ds and dd during the day. My ds attends and early childhood structured program for 5 hours a day 5 days a week so they are mainly taking care of our dd who is 10 months old.


Our ds will begin his ABA the end of this month but it will be on Saturday and Sunday to begin with for 3 hours each day and it is home based. I am very lucky to have the resources that I have through my work.


So it's not too tough for us but my heart goes out the all of the mothers who struggle with work and therapies each day. Hugs to each and everyone of you :-)


 

sammygrl77
by on Oct. 12, 2012 at 9:52 PM
Yes! My twins had EI through them and ds had aqua therapy at the pool that Arlington Pediatric Therapies rented out before they built their own. I always donate to them.

I live in Palatine.


Quoting Siobhan69:

 Yes, I am. Have you heard of Clearbrook?


Quoting sammygrl77:

Are you in the Chicagoland area?



Quoting Siobhan69:


Yes, I work full time. I am a director of finance at a wonderful non-profit organization. It's called Clearbrook and we provide services, work programs and housing for developmentally disabled children and adults. They of course are very understanding to my needs with my son who has PDD-NOS. I have been there for 7 years and I love it.



My husband and I are very fortunate that my parents take care of our ds and dd during the day. My ds attends and early childhood structured program for 5 hours a day 5 days a week so they are mainly taking care of our dd who is 10 months old.



Our ds will begin his ABA the end of this month but it will be on Saturday and Sunday to begin with for 3 hours each day and it is home based. I am very lucky to have the resources that I have through my work.



So it's not too tough for us but my heart goes out the all of the mothers who struggle with work and therapies each day. Hugs to each and everyone of you :-)



 


Posted on CafeMom Mobile
Siobhan69
by on Oct. 12, 2012 at 9:56 PM

 I am in Glen Ellyn but have worked for Clearbrook for seven years now. I just love it, they do such great work. My son was diagnosed with PDD-NOS in June. He has just started at a Early childhood structured program in Bloomingdale. He's doing great so far. It's a small world eh?

Quoting sammygrl77:

Yes! My twins had EI through them and ds had aqua therapy at the pool that Arlington Pediatric Therapies rented out before they built their own. I always donate to them.

I live in Palatine.


Quoting Siobhan69:

 Yes, I am. Have you heard of Clearbrook?


Quoting sammygrl77:

Are you in the Chicagoland area?



Quoting Siobhan69:


Yes, I work full time. I am a director of finance at a wonderful non-profit organization. It's called Clearbrook and we provide services, work programs and housing for developmentally disabled children and adults. They of course are very understanding to my needs with my son who has PDD-NOS. I have been there for 7 years and I love it.



My husband and I are very fortunate that my parents take care of our ds and dd during the day. My ds attends and early childhood structured program for 5 hours a day 5 days a week so they are mainly taking care of our dd who is 10 months old.



Our ds will begin his ABA the end of this month but it will be on Saturday and Sunday to begin with for 3 hours each day and it is home based. I am very lucky to have the resources that I have through my work.



So it's not too tough for us but my heart goes out the all of the mothers who struggle with work and therapies each day. Hugs to each and everyone of you :-)



 


 

sammygrl77
by on Oct. 12, 2012 at 10:02 PM
Clearbrook is a wonderful program! I've heard so many good things about working there. It is a small world:)


Quoting Siobhan69:

 I am in Glen Ellyn but have worked for Clearbrook for seven years now. I just love it, they do such great work. My son was diagnosed with PDD-NOS in June. He has just started at a Early childhood structured program in Bloomingdale. He's doing great so far. It's a small world eh?


Quoting sammygrl77:

Yes! My twins had EI through them and ds had aqua therapy at the pool that Arlington Pediatric Therapies rented out before they built their own. I always donate to them.

I live in Palatine.



Quoting Siobhan69:


 Yes, I am. Have you heard of Clearbrook?



Quoting sammygrl77:

Are you in the Chicagoland area?




Quoting Siobhan69:



Yes, I work full time. I am a director of finance at a wonderful non-profit organization. It's called Clearbrook and we provide services, work programs and housing for developmentally disabled children and adults. They of course are very understanding to my needs with my son who has PDD-NOS. I have been there for 7 years and I love it.




My husband and I are very fortunate that my parents take care of our ds and dd during the day. My ds attends and early childhood structured program for 5 hours a day 5 days a week so they are mainly taking care of our dd who is 10 months old.




Our ds will begin his ABA the end of this month but it will be on Saturday and Sunday to begin with for 3 hours each day and it is home based. I am very lucky to have the resources that I have through my work.




So it's not too tough for us but my heart goes out the all of the mothers who struggle with work and therapies each day. Hugs to each and everyone of you :-)




 



 


Posted on CafeMom Mobile
love_my_angels
by on Oct. 12, 2012 at 11:08 PM
No I use to work and love working but both my children have special needs. Like what I read other moms say its hard to juggle all the appointments it's always some thing between tharapys and dr appointments and specialist it's hard. Some people don't understand and I get looked down on a lot but I honestly think the best for my children is me being home. I think that is o e of the reasons they are thriving so much. It's just hard to relate to people who don't understand how it is.
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