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Raising Special Needs Kids Raising Special Needs Kids

autism

Posted by on Nov. 18, 2012 at 9:32 AM
  • 18 Replies
I have 3 children and a step son. i'm married. I work a full time job. My youngest son's name is Jackson and he was diagnosed autistic when he was 2 1/2. it has been very difficult for us.we have no clue what we are doing and we are just in survival mode at this point. my son does not communicate his needs with us, he uses gestures to try and tell us what he wants.he gets very frustrated he cant talk. although he does babble all the time and he will repeat just about anything we ask him to say. I am just hoping to meet others who are going through similar things and hear their story because you do feel very isolated with a child who has autism. we rarely go anywhere because of his meltdowns. i hope my story helps others as well.
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by on Nov. 18, 2012 at 9:32 AM
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Nicholy10
by on Nov. 18, 2012 at 9:51 AM

How old is he now? My son is 3 years old and is being evaluated for either aspergers, developmental disorder, and/or a sensory disorder. My son didn't start using words or have the ability to speech until 2 1/2 and he only had 6 words then. Now at 3 with speech therapy and seeing a mental health therapist he's had a language explosion, but he still has major aggression/self harm behaviors, lots of tantrums, and lots of defiance. 

Nicholy10
by on Nov. 18, 2012 at 9:52 AM

Oh and with my son he's speech is still difficult to understand but much improved. I understand 80% of it. Those not familiar with him understand about 50%. So that is a HUGE improvement!!

vwbug
by on Nov. 18, 2012 at 10:02 AM
My son is going to be 4 on the 26th of November. My son also has major aggression, self harm and tantrums as well. he goes to school 4 days a week its a public school but he's in a special needs class. he gets 30 minutes of speech a week and 30 minutes of OT a week.its not enough we are in the process of getting him more therapy outside of school atty the Childrens hospital where we live.
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Nicholy10
by on Nov. 18, 2012 at 10:06 AM

My son goes to a public preschool as well. His is only for IEP students. He only goes 3 days a week since he's younger. He gets speech therapy twice a week. They refused to give him OT, despite his therapist recommendations. They said he needed to be evaluated by a specialist first, so that is what we are working on. 

I just want to know what is going on with my little boy, so I know how to help him. 

Quoting vwbug:

My son is going to be 4 on the 26th of November. My son also has major aggression, self harm and tantrums as well. he goes to school 4 days a week its a public school but he's in a special needs class. he gets 30 minutes of speech a week and 30 minutes of OT a week.its not enough we are in the process of getting him more therapy outside of school atty the Childrens hospital where we live.


gma12.1
by on Nov. 18, 2012 at 2:59 PM

Lina isn't Autistic and I don't personally know anyone with a child that has Autism. But I have a question. I know that this is a question that you have all dealt with. For an Autistic child that can't verbalize but does gesture can they learn to use sign language?   I am curious because I know just how frustrated the child as well as the parent gets when you/they can't get understood.

My Second time around & loving it!
boy n girl     toddler girlLina

The Twins

Nicholy10
by on Nov. 18, 2012 at 3:03 PM

My son is being evaluated as stated above. Introducing sign language and him getting speech therapy helped him starting talking and communicating. So I agree with this poster, try sign langauge. :o) 

Quoting gma12.1:

Lina isn't Autistic and I don't personally know anyone with a child that has Autism. But I have a question. I know that this is a question that you have all dealt with. For an Autistic child that can't verbalize but does gesture can they learn to use sign language?   I am curious because I know just how frustrated the child as well as the parent gets when you/they can't get understood.


DDDaysh
by on Nov. 18, 2012 at 4:28 PM

I'm sure it's a very scary situation for you.  Therapy is a must!  

What does the school use as a communication medium?  Are they still focussing primarily on auditory speech?  If so, have you asked why?  

Many autistic students do well with sign, and for those who still struggle with sign, a PECS system can be a miracle.  

My son is borderline on the autism spectrum, but very high functioning and most of his problems come from ADHD and Anxiety.  However, I remember when he was younger and wouldn't talk.  It drove me up the wall because you couldn't figure out what was wrong.  When he finally did start talking, he had an articulation delay that made him difficult to understand, but worse than that was the fact that even though he would talk to you, he wouldn't answer questions.  He'd lecture you all day long about the wind and the moon, but ask him what he wanted to drink, and all you got was silence!  

Speech therapy through the school worked well for my son.  It cleared up his articulation delay very quickly.  Age and maturity, along with behavior modification therapy has helped for some of his other communication issues.  He still has a ridiculously hard time doing certain things, like talking about his day or telling you what he read, but is able to answer more concrete questions like what he wants to eat.  

Academically, he's doing fine.  His reading level and reading comprehension levels are above average.  His math skills are, I think, right at grade level.  He does have some trouble with writing, but that's interrelated to the communication problems.  If he can't even tell you what game he played on the playground, it's not hard to see why he'd have trouble summarizing a book.  

vwbug
by on Nov. 18, 2012 at 7:50 PM
we have been trying to introduce sign language since he was a baby, but he just dissent catch on. maybe when we get him into therapy at the Childrens hospital they will work with him more on that. the school uses pictures to communicate and his reports say he is doing pretty good with those. guess i need to make some for home. it's just so hard when you have a full time job and 3 other children who need your attention and a husband who has no clue how to handle it and is in total survival mode as well. i will be checking into the behavior therapy as well when he goes back to his development specialist.
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CameronsMommy23
by on Nov. 18, 2012 at 7:53 PM
Glad to have you here! I don't have any autism experience but a lot of ladies here do.
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babyblue21
by Member on Nov. 18, 2012 at 8:55 PM
Hi, I have 2 (maybe 3) on the ASD. Ds,9 was diagnosed at 2 with moderate/severe autism. He was non verbal till 4, did not use gestures, not ask for any of his needs. He learned sign language at 3 and still uses some when he can't think of the right word. He uses pictures sometimes when he gets flustered. Now he talks non stop about Pokemon or computers. He's in a gifted school, completely mainstreamed for 1 yr now. He uses a laptop/iPad for writing. He's starting to be able to stop himself from a melt down. He has ABA therapy for 8hrs 6days a week, also includes OT, ST and social.
Dd #1 is 4 and was diagnosed with asperger's at 3. She also did not start talking till after 2. She had multiple ear infections and lost some hearing in her right ear. Her melt downs are still difficult but we're learning how to deal with hers. She is in ST, OT and feeding therapy. She attends special needs preschool 2 x week fulltime where she also gets ST and OT. She wears a compression vest (not weighted). She also has cyclic neutropenia, rare immune disorder.
Both are completely opposite. Ds prefers solitude, strict routine, no touching. Dd prefers in your face, lots of movement, no sense of space or safety.
Dd #2 is 18m. She says 3 words and not consistantly. She has a lot of sensory issues. She is learning sign and has since she was 6m. She has a heart defect. She is in feeding therapy (17lbs now after this rough bout of pneumonia) 3x week for 2hrs. Her ST will decrease and she will start OT once her health improves. Her ST suspects she to, is on the spectrum.
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