How do you mommas who are sleep deprived due to medical issues of your child survive? Ty has always been what most parents consider a "great sleeper", nevermind the fact that his excessive sleep habits are as a result if life threatening seizures and other medical conditions. Well these last couple months the seizures have changed and are now waking us (Ty and I) up at night (dh works graveyard shift and sleeps during the day, so I am up with Ty all day and night by myself). Ty gets up multiple times confused as to where he is and why and the time of the night. He also has had abdominal pain and gtube pain causing him to wake screaming bloody murder in pain. So I'm averaging 3-4hrs of sleep at night. I AM DYING HERE! I'm exhausted! I'm crying over everything! I've got little to no patience left for Ty. Help?! I can't drink coffee due to religious reasons. I try to nap when Ty does but its A) the only alone time I get and B) when I get most of all the household work done. =/ I get respite care but that's when dh and I run most of our outside errands. I'm debating looking into getting a night time nurse =/ any other suggestions?
on Nov. 20, 2012 at 11:14 AM