He's also on Prozac?? He's the LEAST depressed kid I've ever met!
And the baclofen (for spasticity) is making him so tired and not really helping, so I'm going to ask about Botox instead...
He also doesn't heal when he gets sores on his feet, they just stay weeping and open. :( so I need to ask about that and about his edema...
Anyways, with MY kid, I would be putting my foot down and insisting that we change this!! But, I don't really know how much power I have to dig my heals in, and this doctor's ego is at risk since admitting to prescribing unnecessary meds to a mom who's accused of munchausen by proxy.... Yikes, so I have to be really polite and calm and pragmatic and help him see this as his idea... Lol (ugh, neurologists!)
It went GREAT. He was very receptive and respectful of my experience with my own son's neurological problems. He explained Lion's diagnoses in great detail and explained things I needed to look out for and things that were within the range of normal. He listened to all of my concerns and answered all of my questions, and agreed to stop one medication today, and start weaning another by the end of the week, (after bloodwork comes back)! We will revisit a third medication in 2 months that I would like to try weaning, and I got a referral to the rehab team to discuss stopping the baclofen and trying a less systemic approach to his tone issues.
I feel like we accomplished a LOT! I've had bigger fights than that to get my son off just one med. :)
The GAL said I was amazing (which made me feel good. Lol)