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Raising Special Needs Kids Raising Special Needs Kids

Does anyone elses little one have leg pain?

Posted by on Dec. 6, 2012 at 9:37 AM
  • 11 Replies

My DD has had leg pain for over a year. We have been to a rheumatologist and she cant see anything wrong, x-rays normal, and lab work normal. She does have Hypotonia though. They diagnosed her with chronic leg pain. She also has Albinism and NRXN1 gene deletion.Anyone else going through this?

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by on Dec. 6, 2012 at 9:37 AM
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Replies (1-10):
CameronsMommy23
by on Dec. 6, 2012 at 9:43 AM
Hello! Sorry to hear that you're not finding answers. I don't have experience with this but hopefully another mom here does!
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arkansasmama08
by Gold Member on Dec. 6, 2012 at 9:59 AM
Yes, my daughter does. Her physical therapist says she has inflammation all the way from her hip down thru her foot. She usually only complains about it around her knee or calf. He uses a hand held neck/back massager on it and it helps alot after a few sessions. I've been trying to get her to the ortho at children's for about 6 months. My drs office has sent them 3 referrals but I never get a return call from the hospital.
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mandee1503
by Amanda on Dec. 6, 2012 at 11:57 AM

No experience. Here's a bump.

JOEJULA
by Member on Dec. 6, 2012 at 3:23 PM

Have you had any x-rays done for your little one?

 

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arkansasmama08
by Gold Member on Dec. 6, 2012 at 3:48 PM
Yes. Came back clear.
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letstalk747
by Joy on Dec. 6, 2012 at 4:33 PM

 no , sorry she is and what a cutie

JOEJULA
by Member on Dec. 6, 2012 at 7:06 PM

 Good to know thanks

 

darbyakeep45
by Darby on Dec. 7, 2012 at 5:07 AM

Hugs mama!  Hope things get better soon:)

JOEJULA
by Member on Dec. 7, 2012 at 9:00 AM

Thanks I appreciate that!

lifeisajoy
by on Dec. 7, 2012 at 9:28 AM

Hugs Mama!!

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