Backstory: we had zack, our oldest, evaluated at Children's this summer for autism. Almost 3 years ago we had him evaluated thru the state and got an educational diagnosis of aspergers or high functioning autism. He was getting ot and pt. We needed a medical diagnosis because the school wouldn't cover his therapies anymore since he'd aged out and we were homeschooling. Our insurance only gives like 10 visits a year and he's on Medicaid which doesn't cover at all. We'd applied for ssi and a Medicaid waiver program and were denied. So right now he recieves no therapy since school let out for summer. It's starting to wear on him. He really needs the services. Anyway, the dr we saw at Chikdrens refused to acknowledge any of his problems. Mind you he's made considerable progress in motor skills through therapy, but he still deals with social interaction issues, as well as sensory processing, auditory processing, and behavior problems. He does stim regularly but they didn't see it. So, they gave us a diagnosis of developmental delay, which gives you nothing by the way. I immediately asked for a second opinion and he's on the wait list for another dr but its a year long and Medicaid won't pay for it for a year anyway. A friend hooked me up with a sn advocate who gave me the number for this psych and told us to book for the behavior modification training. She said he's the head of the autism program and will be able to see zack for what he really does deal with.
I'm sorry this is so long. It's been a long journey for us. We seem to do nothing but hit walls. If he won't help us, I don't know what else to do except wait the next 6 months or so until his bane comes up on the wait list and he gets an appointment. Part of me is scared too, that if I keep chasing and fighting for what my kids need, they're going to turn me in for munchousens. But how do you just give up? Anyway. Keep us in your prayers please! And if y'all have any advice, I'd love to hear it!