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Welcome to Raising Special Needs Kids! Please introduce yourself..... Get started here!

Hi,

Thank you for joining the Raising Special Needs Kids group!

Whether you're a brand new member or have been on the site for years, you are always welcome at Raising Special Needs Kids!:)

You'll find moms chatting by posting and replying on the group. Please make yourself at home and join in!

  • To add a New Post to a group, click on the "Add a Post" button at the top of the group.
  • To add a Reply to a post, click on the "Reply to Post' button at the top of the post you're replying to.
  • If you're responding to someone's reply, click on the "Quote" button at the bottom of the reply that you're commenting on and then add your reply.
  • Once you start posting and replying on the Groups, you can follow up on your conversations using the links under the 'My Activity' tab at the top of every page.

Please introduce yourself in the replies below and then say hello to some of the other moms who've introduced themselves recently. You can 'Quote' their replies so they know you're talking to them and you can 'Like' their replies, as well. Feel free to send out some friend invitations by clicking on the 'friend Invite' link at the bottom of their reply.

If you have any questions, please let me know. I'm always happy to help!

have a nice dayMichelle


Here are some helpful links:

by on Jan. 16, 2013 at 10:50 PM
Replies (11-20):
darbyakeep45
by Darby on Jan. 19, 2013 at 6:02 AM

welcome!

Quoting kglam11:

Hello, Im Kim a mom to a gorgeous 7 month old girl named Stella. She was born with arthrogryposis. Meaning she had multiple joint contractures. She is a tough little cookie and the light of my life!


darbyakeep45
by Darby on Jan. 19, 2013 at 6:02 AM
1 mom liked this

Welcome!

Quoting bre_in_pink2878:

Hi! My name is Bre and I am an engaged mother to four wonderful boy's.  All of my boy's are special needs children.  All four have ADD/ADHD, two have ODD and one has been diagnosed with Aspergers.  Their ages are 14, 12, 11, and 6.  


kglam11
by on Jan. 19, 2013 at 4:45 PM
1 mom liked this

Wow, sounds like you have a very busy life! Im 37 and just had my first baby. Not sure if we will have more still thinking about it. Our daughter keeps us busy with many doctor appointments and Therapy twice a week. Plus we both work full time.

darbyakeep45
by Darby on Jan. 19, 2013 at 4:50 PM

Welcome!

Quoting kglam11:

Wow, sounds like you have a very busy life! Im 37 and just had my first baby. Not sure if we will have more still thinking about it. Our daughter keeps us busy with many doctor appointments and Therapy twice a week. Plus we both work full time.


bgrn
by on Jan. 19, 2013 at 9:22 PM
1 mom liked this

Hi all!  My name is Viki.  I'm married and am 39 yo.  I'm brand new to Cafe Mom.  I joined this group b/c my 12 year old son has some physical issues and I'm trying to find other moms who may be able to help me figure out how to handle all that has come along in the past 9 mos of our lives.  I'm not even sure if I really "belong" to this group, but I thought I'd give it a try.

My rapidly growing son (6" in a year, now 5'8') began having knee issues last May.  He suddenly was unable to walk without terrible pain.  He was on crutches and in a wheelchair the last 8 weeks of 6th gr.  We saw specialists in Chicago and none of them could tell us what was going on.  After coming back out to the suburbs and finding a wonderful chiro/PT office, they discovered that he has a congenital defect in his hips.  This couples with patellarfemoral issues and "internal derangement of the knee", thus making his knees hurt.  He was unable to climb stairs, walk, etc. for months.  Now, he still can't jump, run, kneel, squat, kick, etc.  Walking, stairs, and three stairs on a ladder to get into his bed is about all he can handle.

Well, we've begun adapting to that physical problem with him.  We handle it a lot better now.  However, this past Monday, another bombshell was dropped on us.  My son's scoliosis (which we also found out about last summer) has worsened.  He will now need to wear a back brace until his growing slows, which could be 4-6 years.  He even has to sleep in it.  It's plastic and will run from midback to a little over his hips.

I just don't know how to process all of this.  He's so mad, frustrated, angry, irritated, etc. about having something else "go wrong" with his body (he is also being treated for Raynaud's Synd. which I also have).  He's at that age where the littlest difference between kids makes them stand out.  He won't even let us tell our parents or family members about what's going on. 

I know that these problems are probably nothing compared to what most of you go through day to day.  I don't mean to sound like a whiner, but I just don't know how to cope with this or how to help my DH and DS cope with this.  We're going to pursue a 504 plan with his school. Has anyone done that yet?

Thanks for any input you can give me.  I'd love to hear any ideas you may have.

God bless!

Vikiembarrassed

letstalk747
by Joy on Jan. 20, 2013 at 2:25 PM
1 mom liked this

welcome Viki , im joy ,  you came to the right  place

darbyakeep45
by Darby on Jan. 20, 2013 at 5:07 PM
1 mom liked this

Welcome Viki!

Quoting bgrn:

Hi all!  My name is Viki.  I'm married and am 39 yo.  I'm brand new to Cafe Mom.  I joined this group b/c my 12 year old son has some physical issues and I'm trying to find other moms who may be able to help me figure out how to handle all that has come along in the past 9 mos of our lives.  I'm not even sure if I really "belong" to this group, but I thought I'd give it a try.

My rapidly growing son (6" in a year, now 5'8') began having knee issues last May.  He suddenly was unable to walk without terrible pain.  He was on crutches and in a wheelchair the last 8 weeks of 6th gr.  We saw specialists in Chicago and none of them could tell us what was going on.  After coming back out to the suburbs and finding a wonderful chiro/PT office, they discovered that he has a congenital defect in his hips.  This couples with patellarfemoral issues and "internal derangement of the knee", thus making his knees hurt.  He was unable to climb stairs, walk, etc. for months.  Now, he still can't jump, run, kneel, squat, kick, etc.  Walking, stairs, and three stairs on a ladder to get into his bed is about all he can handle.

Well, we've begun adapting to that physical problem with him.  We handle it a lot better now.  However, this past Monday, another bombshell was dropped on us.  My son's scoliosis (which we also found out about last summer) has worsened.  He will now need to wear a back brace until his growing slows, which could be 4-6 years.  He even has to sleep in it.  It's plastic and will run from midback to a little over his hips.

I just don't know how to process all of this.  He's so mad, frustrated, angry, irritated, etc. about having something else "go wrong" with his body (he is also being treated for Raynaud's Synd. which I also have).  He's at that age where the littlest difference between kids makes them stand out.  He won't even let us tell our parents or family members about what's going on. 

I know that these problems are probably nothing compared to what most of you go through day to day.  I don't mean to sound like a whiner, but I just don't know how to cope with this or how to help my DH and DS cope with this.  We're going to pursue a 504 plan with his school. Has anyone done that yet?

Thanks for any input you can give me.  I'd love to hear any ideas you may have.

God bless!

Vikiembarrassed


darbyakeep45
by Darby on Jan. 20, 2013 at 5:32 PM

Welcome Gail!

Quoting GELiz:

HI, I am Gail. I am a grandma, retired teacher who writes curriculum for grammar and writing. I have a new project that I am embarking on which is to write a vocabulary program for autistic children that can then move them into writing. So I am here to learn about the concerns of moms and troubles of moms education their SN children.


sissyjoylynn
by on Jan. 20, 2013 at 9:21 PM
3 moms liked this

Welcome to the group I am fairly new too.  So I hope you meet some great people here. 

hugsJoy Lynn

lovenMyfamily
by on Jan. 21, 2013 at 8:37 AM
2 moms liked this

Hello! I am Katie. I have a daughter Evie, 10 that is "typical" and a son, Seth, 13 who has Down Syndrome. Both of my kids are Amazing! My son is not high functioning. He does not speak and is partially hearing impaired. He is the sweetest child I know. :) Thanks for having me in your group!

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