Help?? Even just someone to talk to and offer a listening ear?
I am a mommy to two precious little girls, one is almost three and my youngest just turned 4 months..
My youngest has alot of problems, was born and in the NICU for 2 weeks we almost lost her...
Now she has FTT they think spina bifida, possible slightly autistic and Chairi Malformation.
I feel like my mind is on overload and no one seems to understand..
Someone help??
You onload oh hi I am blessed 4818 on here I have an 19 year old who is in her last year of school my daughter was born with trismony 21 down's syndrome March of 2011 she started with suendo seizures she started with just one a week now some weeks may be 3 boy I have it rough she is having one now no she more then one now to anyways she wonts to walk that sends me crazy now I moved my computer out here in the dinette but she wonts to walk and eat I am here you need to talk.
Shes a huge fighter and has been since the begining (:
I dont know too much about it yet all I know is that is part of the reason why she wont eat why she gags and throws up so much and is making her weight issues worse...
Quoting BusyMommy21910:Shes a huge fighter and has been since the begining (:
I dont know too much about it yet all I know is that is part of the reason why she wont eat why she gags and throws up so much and is making her weight issues worse...
Yes :(
we will be going to a GI doctor soon to discuss it...
Welcome to the group! You have come to the right place to find support on the internet. There is help out there for you and your daughter. Have you signed her up for early intervention (http://www.wrightslaw.com/) with your school district which is free? You might also find Easter Seals (http://www.easterseals.org/) and Variety Club (http://www.usvariety.org/) very useful. You can learn more about her diagnosis through here: http://www.conquerchiari.org/.
Dawn
Beautifully Talanted Autistic Social Story Author
Diagnosed Asperger Syndrome as an adult
Diagnosed Edema (since young)
Author Page: http://www.toyboxunlimited.com/ (has discounts)
*HUG* My sister has MR, CP, Epilespy, and Autism, had a heart defect, was tube fed the first two years of her life, and she was born with a double aerotic arch, which means her aeorta was wrapped around her trachae TWICE. The didn't catch it in time so by the time they did her aeorta had literally been strangling her trachae. She was the second child to have the surgery done to fix it and the first to survive. She wasn't supposed to live past two because her trachae and aeorta were damaged, but she was still going... so then five was supposed to be her deadline... then seven, and then they said she would die at 18. She turns 20 at the end of the month and she has more energy than I do. :) Hang in there. I know it's hard. Try to join a support group if you have time. They help. There are online groups too!
spd 2yr old and boardwalk cracks?
- BusyMommy21910
on Feb. 1, 2013 at 4:20 PM