Taking care of them while giving them a normal life
My 5 year old's diagnosis is pretty new ( rare chromo disorder), so I'm trying to figure out how to balance taking care of his needs while at the same time giving him a normal life. We went to the zoo with a friend and her nondisabled children, and we spent way longer than I ever do plus the kids were running most of the time. I let him run up ahead of me with his friends, still in my view of course. That evening I realized he was so pale his face was white with dark blue circles under his eyes and blue lines in the crease from nose to mouth. I gave him a breathing treatment and after that and resting his color came back. Then I noticed his arms were covered with a rash. I have no idea what plant he might have touched. I felt so guilty.
I know next time I need to let the other moms know we can't stay too long, and he'll need breaks. I just want him to have friends with the least restrictions. He may have asthma, being followed for it, and uses a nebulizer. At church one of the youth leaders was having him race around. He'll stop running if he's coughing, but do I tell adults not to let him run, or let him do things and learn his limits? I feel like I'm an overprotective mommy if I hover over him all the time, but a bad mommy if I don't protect him.