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Each Child's Special Need

Posted by on Mar. 8, 2013 at 12:10 AM
  • 27 Replies

 I'm new to this group and this has probably been asked a gazillion times in here, but what does each of your children's special need(s)?


by on Mar. 8, 2013 at 12:10 AM
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by on Mar. 8, 2013 at 12:11 AM

 My son's name is Konner (3) and he has Dystonia possibly the one with Parkinsonism and Autism. That's the best knowledge we have right now as far as his diagnosis. He is in a wheelchair and we have been told that it will be a miracle if he ever walks even with some sort of assistance.

by on Mar. 8, 2013 at 12:14 AM

DS(5) has a Bicuspid Aortic Valve, ADHD, and Anxiety.

by on Mar. 8, 2013 at 1:07 AM
Dd 18 (in 2 days!) Has visual tracking disorder, learning disorder, hashimoto's hypothyroidism, Osgood Schlatter's in her knee which was resolved after her 2nd surgery, an extra nasal passage and severely deviated septum, and pretty much a klutz who never ceases to amaze me with the things she ends up with... too long for me to type out, but she has been to some of the most obscure specialists that I didn't know existed before her. But she's really healthy and relatively normal if that makes any sense at all. Lol.

Dd 5 has sensory processing disorder (several variations) and we are awaiting approval to get her into a developmental ped for suspected anxiety and possible behavioral issues.

Ds 5 has spastic quad cerebral palsypalsy with dystonia and a muscle or motor disorder (can't remember the name but it is basically right with the cp).
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by Elyssa on Mar. 8, 2013 at 1:12 AM
Elijah, age 10, has a rare brain malformation (FCD Taylor Type 2-a), caused by a TSC mutation in just some of his genes... Which resulted in severe, intractable epilepsy and developmental disability.

Lion, age 9, has cerebral palsy and alternating hemiplegia of childhood. He is in a wheelchair, but may walk again someday...
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by on Mar. 8, 2013 at 1:16 AM
Nathan, almost 7, autisim
Abby. 5, Pierre robin sequence & autism.
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by on Mar. 8, 2013 at 1:24 AM
1 mom liked this

Thor,my son now 17 has many issues. His story is on my homepage. This is him at 16,meeting  Woody and Jessie. he was a Make A Wish child,we went to Disney.Fla

by on Mar. 8, 2013 at 5:17 AM
My son, Carl Marcus, is 20 and is mentally 6. He has: Bipolar with phycosis, Mild Mental Retardation, Neorogical issues due to being starved and beaten (by his bio dad and not my hubby), anxiety, social anxiety, adhd, ocd and much more but I am sure you get the idea. He rarely sleeps and trust me it shows daily with his attitude. Without my husband, I dont know how I would do it. Especially with my health issues and disabilities

hugsJoy Lynn

by Bronze Member on Mar. 8, 2013 at 5:22 AM
Thomas is 8 and has Aspergers and ADHD, Jonathan is 5 and has Joubert Syndrome, Complete Agenesis of the Corpus Callosum, Multiple Grey Matter Heteratopia, Retinal Degeneration, Kidney Dysplasia, Seizures, Aspiration, Low Muscle Tone, and Global Delays. He's in a wheelchair but is working with a gait trainer in therapy. Developmentally he's around 8 months old.
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by on Mar. 8, 2013 at 6:36 AM


My son is a happy go-getter type of young man

My son is 20 yrs old (almost) and has spastic athetoid cerebral palsy, developmental delays (on a toddler/young pre-school level), disruptive behavior disorder nos, encopresis (ongoing-due to severe neglect-(he is adopted) and little bit due to cerebral palsy, and nose issues (had a nose cauderization in 2010 and has not had any nose bleeds until this week-he has had 2-worried about that-I have to keep an eye on that) 

and just yesterday he was diagnosed with migraines (uck-poor fellow) and they are still testing him with an EEG (still being scheduled) to see if anything further

My son will always live with us.  He is in a wheelchair.  He uses a rollaide walker (with assistance-we have to hold it so he don't fall on his nose), he uses a dynavox (talk box) for communication and pecs and adaptive sign language

by Darby on Mar. 8, 2013 at 8:12 AM

Welcome to the group!

My son is 4 years old with Cystic Fibrosis, Autism, Aarskog Syndrome, 16p Chromosome Duplication, Gastroentesis, Asthma, and Brain Damage/Abnormalities.  He's 4 years old with the brain of a 10-12 month old.  Due to the Aarskog Syndrome, he has the bones of an 18 month old.

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