I'm starting to believe that my issues and my sons are related. We both have hypermobile joints among other things. Someone told me I should look into Ehlers-Danlos Syndrome Hypermobility Type. It actually fits both of us really well. How do you bring it up to a doctor that you think more is going on than your child is diagnosed with? I don't want to sound crazy but I feel like we are missing a piece to the puzzle that would explain his wide array of issues. He has had genetic testing but no one has looked at the more rare conditions or even mitochondrial disorders.
on Mar. 22, 2013 at 9:31 PM