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Raising Special Needs Kids Raising Special Needs Kids

What diagnoses does your child have?

Posted by on May. 5, 2013 at 6:02 PM
  • 63 Replies

We have lots of new members in the group...let's check in and list the diagnoses our children have and ask questions if we have any!

by on May. 5, 2013 at 6:02 PM
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Replies (1-10):
darbyakeep45
by Darby on May. 5, 2013 at 6:03 PM

Brady - 4.5 years old (turns 5 in October)

Cystic Fibrosis, Autism, Aarskog Syndrome, 16p Chromosome Duplication, Asthma, Gastroparesis, Brain Damage, Sinus Disease, Strabismus

jjamom
by Michele on May. 5, 2013 at 6:38 PM

Alex will be 8 at the end of this month.

His primary diagnosis is Down Syndrome.  He also has hypothyroidism, resolved sleep apnea, repaired heart defects, pulmonary hypertension, hypotonia and feeding issues (sensory and oral motor related).  All of these diagnoses are secondary to his DS.

mammakittykat
by Member on May. 5, 2013 at 7:10 PM

 JW-11- has ASD and ADHD

Brhianna -8-currently has ADHD but is in the testing process for different learning disabilities.

Johnathan-5- has Spastic Diplagic Cerebral Palsy and Torticollis

Glenn-5- has very mild cerebral palsy, speech delay, and developmental delays. Oh and Torticollis too.

 Dreama Proud wife to Jerry

Proud mommy to

Jerry William, Brhianna Angelina, Johanathan Patrick and Glenn Cleveland

luvnature
by Member on May. 5, 2013 at 7:10 PM

my daughter was diagnosed with a Mild Mental Retardation in 2003 when she was 12 yrs old. She is now 22 yrs old. 

The gray and white matters in her brain are mixed up together instead of being in 2 different blocks like a normal brain. She was also born with a 15% hearing loss which has been corrected with the wear of tubes in both ears and when they fell she wore hearing aids for one year. her left kidney is long and thin (so misshapen), she has arthritis in one finger and her wrists are connected to her hands with the help of very strong tendons, nerves and muscles (the wrist bones do not touch the hands), because of the strong tendons, nerves and muscles, she is capable of using her hands like everyone else, but she complains a lot of sore wrists so when she is in pain, she puts on a wrists brace and it seems to help her. she has a severe learning disability, some speech delays, her mentality is equivalent to that of a child between the ages of 12 and 15. she also has developmental delays. she has panic attacks at the sight of needles. she had a full jaw reconstruction surgery in 2009 otherwise she would have had to wear braces on her teeth for the rest of her life. We know for certain that she was born that way and there is nothing we can do to fix her brain. surgery is out of the question because she would die on the operating table. she is on full disability pension and will be for the rest of her life. she still lives at home.

LittleCondon
by on May. 5, 2013 at 7:25 PM

My 3 yr old DD Madison was diagnosed with Achondroplasia dwarfism and because of the small stature of her body she has some issue with her sinuses (children with dwarfism often have small noses that can look pushed in) and joints (mainly her knees). She also has some bowing of her legs which will most likely have to be corrected later on with surgery. 

darbyakeep45
by Darby on May. 5, 2013 at 7:47 PM

What is Torticollis?  

Quoting mammakittykat:

 JW-11- has ASD and ADHD

Brhianna -8-currently has ADHD but is in the testing process for different learning disabilities.

Johnathan-5- has Spastic Diplagic Cerebral Palsy and Torticollis

Glenn-5- has very mild cerebral palsy, speech delay, and developmental delays. Oh and Torticollis too.


iamtryingforme
by Member on May. 5, 2013 at 8:14 PM

 Depression, ADHD, Anxiety , Autism , Tourette syndrome, PDD (Pervasive developmental disorder),   PTSD,  ODD (oppositional defiant disorder) 

 

 

 

 

 

 

 

 

 

 

mammakittykat
by Member on May. 5, 2013 at 9:51 PM
1 mom liked this

 It is a shortening of the sternoid muscles in the neck. Basicaly it causes stiffness in the neck and causes restriction in the range of motion of the neck. Without therapy it can make it difficult for them to turn their head a certain way.  With pt they now have almost complete range of motion in their necks, but when they hit a growth spurt it acts up again and we have to intensify their therapy for a few weeks to get it stretched back out. Basically it is like having a constant kink in your neck. it is common in twins because of how cramped they are inutero. They lay a certain way for several months and aren't able to move their heads as freely as a single child so it causes that muscle to shorten.

Quoting darbyakeep45:

What is Torticollis?  

Quoting mammakittykat:

 JW-11- has ASD and ADHD

Brhianna -8-currently has ADHD but is in the testing process for different learning disabilities.

Johnathan-5- has Spastic Diplagic Cerebral Palsy and Torticollis

Glenn-5- has very mild cerebral palsy, speech delay, and developmental delays. Oh and Torticollis too.


 

 Dreama Proud wife to Jerry

Proud mommy to

Jerry William, Brhianna Angelina, Johanathan Patrick and Glenn Cleveland

gma12.1
by on May. 5, 2013 at 10:12 PM

 Lina is 9.5 she is in 3rd grade in a self contained SpEd program. She has seizure disorder controlled for now with medication (knock on wood), both kidneys are a little larger than normal each has a cyst on the the lobe, high blood pressure, good/bad cholesterol & triglycerides way out of wack, being monitored for possible heart problems related to the high blood pressure & cholesterol/triglyceride problem, she has a mild hearing loss and wears aids, her vision is really bad and so far her glasses have been changed every year at her follow ups to stronger scripts, she receives OT, ST, at school, she has developmental delays and is currently at the mental/emotional level that ranges between 4.5-6 she has duplications on specific genes on the 10th & 13th chromosomes which they believe is the main cause of her obesity that we are fighting really hard to control. They believe that she will always be at 50%

My Second time around & loving it!
boy n girl     toddler girlLina

The Twins R & A

N.Carter2001
by Silver Member on May. 5, 2013 at 10:32 PM

Jacob is 5 years old. He has mild autism.  and he has hsp. So he is in a wheelchair cause his legs dont work. Im trying to get him to see a special doc so maybe we can get him up standing maybe walking. But my rides keep backing out. Them months again on waiting list.

Our other son is 2 years old. Chase  has a speech delay.

And i have mild cp.

 

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