Do any of you ladies have experience or know anyone who does know about Pituitary Dwarfism? I've done some research and Brady fits this diagnosis to a tee...most kids aren't formerly diagnosed until later in childhood though. Kids with this diagnosis have slow to no growth at all over a course of 1 or more years. They are smaller than children 2+ years younger than them. Biggest symptom is a bone age scan revealing bones of a child more than 2 years younger. Another symptom is growth hormone deficiency. Although pituitary dwarfism children have proportionate limbs so they typically "look" normal but are extremely short and have a full adult height much shorter than others.
Brady's height and weight haven't changed in almost 2 years even though he intakes about 1800-2000 calories per day. His height is "failure to thrive" and not even on the chart for a 4.5 year old. His bone age scan revealed he has the bones of an 18-24 month old child which is a big difference based on his chronological age. He is physically the size of a 2-2.5 year old on average. Most 3 year olds are taller than him. He wears a size 24 months/2T bottoms and 4T tops...he has a long waist/torso with a distended belly due to his GI problems.
Any thoughts or experience would be greatly appreciated:) How tall are your children around this age? What is their weight?
UPDATE - Brady's growth hormone stimulation testing is tomorrow...he'll be in the PICU under anesthesia for almost 5 hours. I received an email from Brady's endocrinologist today in regards to the pituitary dwarfism. He does think this is highly possible for Brady as it would explain a lot. He wants to hold off on any diagnoses until after his testing though...totally understandable.