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Raising Special Needs Kids Raising Special Needs Kids

What type of apts does your child have and why?

Posted by on Jun. 29, 2013 at 7:21 AM
  • 21 Replies
My son sees a Rehabilitation Doctor due to having Cerebral Palsy Gastrologist-encopresis Neurologist-right now diagnosed with migraines Orthotics/Prothotics-braces Rehabilitation Places-for his medical equipment-wheelchair, special bed, walker, commode-etc (and adding hoyer lift hopefully soon -in the process) Primary Care Physician-as needed Health Care Agency-for care in the home Chiropractor-alignment/back Lifeskills agency Opthamologist Specialist-eyes Pediatric Dental Specialist-he is unable to go to a regular dentist-he needs special care and soon he will be transferred to an Adult Dental Specialist-which is still 2 hours from our home County Worker-to monitor health care agency, lifeskills agency, equipment not paid through medical assistance, and respite Those are the main ones I can think of seen on a regular basis
by on Jun. 29, 2013 at 7:21 AM
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Replies (1-10):
arkansasmama08
by Gold Member on Jun. 29, 2013 at 9:40 AM
Zachary has aspergers. Right now he's not in any therapy so his most current appointments are with Children's to get his medical diagnosis. He also gets X-rays every 6 months now to monitor his scoliosis.
Maggie sees a ot, pt, and special Ed during the year. Shes also been evaluated by a st abd behaviorist and will have testingbthrough the sumner. She's also been to an allergist and ortho.
Jeremiah has the long list. He sees a GI and pulminologist every couple of months. He also sees a pt and ot during the year, and will be evaluated by the same behaviorist as his sister during this summer. We have to take him to the heart clinic next week to check for a murmur, so we may have to add cardiologist to his list :(
mlogsdon
by on Jun. 29, 2013 at 10:08 AM

Cardio- has a heart murmur. Neuro- has PVL. Ophthalmologist- nearsighted lol. Geneticist- still havent found the underlying cause of everything. GI- Eosinophilic Esophagitis. ENT- laryngomalacia, had trach. Delopmental clinic- global developmental delays. Regular peds as needed. Speech therapy, feeding therapy, physical therapy, occupational therapy. 


I think thats it :)

charley31
by Bronze Member on Jun. 29, 2013 at 10:20 AM
Ryan sees his developmental pediatrician and autism psychologist for the aspergers.
He sees a neuro and eye dr @ chop for his tic
He has his behaviorist every week
Pulmonary for asthma but he has been doing great knock on wood...
We are done with gi finally and cardio clearled him...he has an enlarged heart but they said electrically it works great.
Mipsy
by Chelle on Jun. 29, 2013 at 11:16 AM
GI- food allergies, constipation, dysmotility, gtube, dysphagia

Pulmonology- asthma, tracheobronchomalacia, dysphagia

Neurology- developmental delays, epilepsy

Genetics- suspects mitochondrial disease

Special Needs pedi- normal stuff, mitochondrial disease symptom stuff

Developmental pedi- evaluation

Behavioral counselor- behavioral therapy, family counseling to help behavior

Allergist- food allergies, environmental allergies, asthma, eczema

Cardiologist- heart murmur

Endocrinologist- hypoglycemia

Then just speech therapy now at home and school. Graduated occupational therapy!
Linagma03
by Gold Member on Jun. 29, 2013 at 6:32 PM

Lina has her family dr. who sees all of us for the routine things. He also choreographs the referrals to the specialists. 

Neuro--seizures, lesions on the left hemisphere of her brain.

Nephrology--enlarged kidneys, & cysts on right kidney

Hypertension--very high blood pressure

Nutritionist--weight

Cardiologist--monitoring her heart due to bp issues

Optometrist--regular screening and glasses

Opthomology--as needed as for any issues that Eye dr finds

Audiology--yearly hearing test & hearing aids

Geneticist--she sees him every 3 years unless we need to see him sooner

Developmental--she sees him as needed he said he wants to start seeing her every 3 years now unless we have problems

GI--this is new so I don't know if he is going to be added to the list or not

jjamom
by Michele on Jun. 29, 2013 at 7:18 PM
Cardiologist - for monitoring of a repaired heart defect (with device implanted), pulmonary hypertension and a small leak in one of his valves.

Endocrinologist - he has hypothyroidism

Feeding clinic/GI - for ongoing feeding issues and reflux

Opthamologist - for regular vision checks. He doesn't have glasses yet, but already has slight vision issues and will need them in the future.

Orthotist - he wears orthotics due to pronating and ligamentous laxity in his feet and ankles.

We used to see ENT, pulmonologist and geneticist regularly, but now see them each every few years for check ups.

I think that's it. Well, besides therapies.
T-HoneyLuv
by on Jun. 29, 2013 at 7:32 PM
Urology- Neurogenic Bladder, stoma
Nephrology-Chronic Kidney Failure
Gastroenterology-Complicated bowel and intestinal dysfunction, Gastroparesis, GERD, liver problems
Infectious Disease- Chronic Infection
Rheumatology- Joint pain
Ortho-Joint pain
Palliative at one point for pain management
Hematology for anemia ( pending )
ENT- sleep apnea
Derm- eczema ( harbored staph )
Gen Surgery- picc line
Pedi - everything else.
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darbyakeep45
by Darby on Jun. 30, 2013 at 8:29 AM

Pulmonology - Cystic Fibrosis, Asthma

Neurology - Seizure Disorder, Brain Damage/Abnormalities

Endocrinology - Short Stature, *possible Pituitary Dwarfism, growth hormone deficiency 

GI - G-tube, Gastroparesis, Constipation

ENT - ear tubes, chronic ear infections, Sinus Disease

Opthamaology - Strabismus

Neurodevelopmental Pediatrician - Autism, Aarskog Syndrome, 16p Chromosome Duplication

Pediatric Surgery - G-tube, Hidden Penis


darbyakeep45
by Darby on Jun. 30, 2013 at 8:29 AM

Occupational, Physical, Feeding, and ABA therapies...currently on waiting list for Speech therapy

mommyto3121405
by on Jun. 30, 2013 at 8:59 AM

my son goes every 6 months to a developmentalist due to him being asd. he gets pt, ot and speech at school

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