Hello there. My name is Caitlin, and I'm currently 27 weeks pregnant with my first child. I've been with my child's father for about a year and a half now. We were actually very excited when we found out we were expecting despite the fact that we are young considering I'm only 18 and he's 20. We were even more excited when we found out we are having a little baby girl whom we decided to name Aaliyah. Then just about a month ago we received heart breaking news that Aaliyah has a birth defect called Spina Bifida which is when the baby's back doesn't close up during development, leaving a lesion that looks like a bubble on the baby's back. It caught us completely off guard because throughout my pregnancy all my blood tests, and ultrasounds came back fine. It was until we had an ultrasound to find out the sex when the doctor discovered something was wrong. It's really hard to digest the fact that there is something wrong with my child. When someone becomes pregnant they usually just automatically assume their baby is going to be fine and healthy. My boyfriend and I really been pulling each other through this, and trying our best to stay strong and think positive. I live in Arizona, and so I am going to have to be making 4 hour long car rides to Phoenix to see specialists, and I was also informed that I have to have Aaliyah in Phoenix away from all my family, because she's going to need surgery as soon as she's born to remove the bubble on her back. I had my first appointment in Phoenix yesterday, and the doctor confirmed that she has L5 Spina Bifida. I'm not really educated on the levels yet or the outcomes depending on what level the spina bifida is. The only thing the doctor really told me is that she's most likely going to need some type of aid to help her walk. It's a very painful situation right now for my boyfriend and I emotionally because we love so much, and we don't want her to be treated differently or anything growing up. I'm just wondering, are there any other moms out there who have children with Spina Bifida? How are they developing, and living their lives? Are there any moms who had babies who were also L5 that could give me some type of advice of what to expect? I'm just very worried, and desperate for answers and support.
on Aug. 3, 2013 at 1:14 AM