We had a Neuro appt this afternoon and we got to talking and realizes when Ty was on IV keppra, he was seizure free! So Neuro is leaving meds still for a week, getting serum levels next week, and if he's still seizure free in 2 weeks, we are going to start weaning off his trileptal eventually fully taking it out!!!!!! Omg!!!!! I'm so freaking excited to wean off a med!!!!! Then he just be on his keppra :) yay!!!!
We are gonna have to lower his miralax too now that his diet is just liquid and he's really getting the full doses of miralax, he has watery diarrhea. Gonna go from 2 caps to 1 cap a day!! Woo!!!! So freaking happy to wean some meds down!!!
At the same time, I asky myself "at what cost to Ty are we able to do this though?" =\
And then Ty's school sent balloons and a teddy bear to our house today!!! Love them!!!
on Sep. 11, 2013 at 9:46 PM