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Raising Special Needs Kids Raising Special Needs Kids

What does this sound like to you

Posted by on Sep. 29, 2013 at 7:27 AM
  • 22 Replies
Ds has yet to any diagnoses, other then a speech delay. To me its more then a speech delay he will randomly start using another word for something he already knows a word too. For instance juice at one point went from juice to uggaum to juice again. He did the same thing with milk. He used to call friends he forgot the name to friends now he says yahnah. I don't know what it is and no matter how many times I correct him it still is the same.

He has yet to be potty trained, he is four and if I remind him every half hour which gets exhausting. He will go, except for poop he refuses to poop in the potty. If I don't remind him at all its accidents all day. I'm back to the point of why try its exhausting me.

He doesn't like spaghetti or hamburger helper like foods. He would rather go hungry. He does try them but I believe he doesn't like the texture. After two or three bites he is typically done and still hungry.

As of more recently I would say really starting within the last year he has told me that certain vacuums bother him. He will cover his ears and say sound momma sound. In his way he is saying it's too loud, and he wants it quite. He has said that about an array of things. From washer, dryer, dishwasher, lawn mower, radio, tv, cell phone, cars, people talking, and animal noise's.

He also doesn't understand that you can't take your toys everywhere he has to have at least one favorite toy with him at all times. If I try and bribe, beg, or pretend I forgot it's a much bigger catastrophe then if I just bring the toys in general.

He is getting tested by the school on November 15 the soonest they had. But I'm preparing myself for autism, downs, and really anything. But I was wondering how many of you have a child with any or all of these problems, how you deal/coupe, and explain to family and friends the way to deal with them?
by on Sep. 29, 2013 at 7:27 AM
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Replies (1-10):
Mipsy
by Chelle on Sep. 29, 2013 at 8:31 AM

Well if he had down syndrome, you would have known a long time ago. Is he working with a speech therapist? 

Linagma03
by Gold Member on Sep. 29, 2013 at 9:43 AM

 I don't have any expireince (?) with what you are going thru but I hope you get some answers. If he is seeing a speech therapist maybe she can help you get going in the right direction so that your Dr will send him to a developmental specialist.

Good luck.

mandee1503
by Amanda on Sep. 29, 2013 at 11:52 AM
No idea. But here's a bump. Good luck!
Momof4AEMW
by Gold Member on Sep. 29, 2013 at 11:59 AM
1 mom liked this

I will tell you my son with autism and sensory processing disorder acts very much like that.  He is in speech and OT as well as has an IEP at school.  We are also going to start a more in depth sensory therapy program (that would help with the noise/food texture issues you are talking about.)

On the downs front, I have one child with that too, and I can tell you if your child is 4, he does not have down syndrome.  You would know by now, and that one is an easy blood test the docs can do.  There are physical appearance characteristics that are associated with downs, and you and your docs would have seen them by now.

I think you are right in questioning the behaviors, before your appointment you may want to check out autismspeaks.org and possibly fill out their MCHAT for any red flags you feel your son may show on the ASD spectrum.  There may be other developmental testing they will do to just rule in or rule out global developmental delays. 

The good news is if something is found, there are lots of therapies and interventions now a days that help so much.  Disability or not, he's still your amazing child, so just remember that!  Best of luck. 

Bookoholic
by Member on Sep. 29, 2013 at 3:27 PM
The downs I would be referring to is trisctomy (sp). But again in not sure. And I will check autismspeaks.org for sure.


Quoting Momof4AEMW:

I will tell you my son with autism and sensory processing disorder acts very much like that.  He is in speech and OT as well as has an IEP at school.  We are also going to start a more in depth sensory therapy program (that would help with the noise/food texture issues you are talking about.)


On the downs front, I have one child with that too, and I can tell you if your child is 4, he does not have down syndrome.  You would know by now, and that one is an easy blood test the docs can do.  There are physical appearance characteristics that are associated with downs, and you and your docs would have seen them by now.


I think you are right in questioning the behaviors, before your appointment you may want to check out autismspeaks.org and possibly fill out their MCHAT for any red flags you feel your son may show on the ASD spectrum.  There may be other developmental testing they will do to just rule in or rule out global developmental delays. 


The good news is if something is found, there are lots of therapies and interventions now a days that help so much.  Disability or not, he's still your amazing child, so just remember that!  Best of luck. 


Bookoholic
by Member on Sep. 29, 2013 at 3:27 PM
No not yet.


Quoting Mipsy:

Well if he had down syndrome, you would have known a long time ago. Is he working with a speech therapist? 


Bluecalm
by Silver Member on Sep. 29, 2013 at 4:17 PM
I thought Trisomy 21 is Downs.
I'd also suggest looking at child development lists of what is typical behavior and speech/language for his age.
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Mipsy
by Chelle on Sep. 29, 2013 at 4:22 PM
Well if he has a speech delay he needs therapy. Personally to me, that all sounds fairly normal.
Bluecalm
by Silver Member on Sep. 29, 2013 at 4:39 PM
1 mom liked this

I think a lot of it sounds pretty age appropriate, like wanting to take his toys with him and lots of kids don't like certain foods at 4. He may be trying to say a certain type of juice, like apple or orange instead of just juice and that's why he seems to forget his words. Try doing some work with him like Starfall or apps that develop phonics and vocabulary and see if that helps.

Bookoholic
by Member on Sep. 29, 2013 at 4:40 PM
His pedi suggested that letting the school take over speech therapy for now, since I'm enrolling him in school. I am getting him speech therapy, I have yet to decide on private therapy.


Quoting Mipsy:

Well if he has a speech delay he needs therapy. Personally to me, that all sounds fairly normal.

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