This is my daughters diagnosis....We found out this morning and Ive been numb most of the day. I got on uniquechromo.org and read the info about 20p duplications and it fits my daughter very well. It also means my daughter may be mentally impaired beyond just her speech delay. Its known to cause autism and ADHD which I worry about a lot since she already has sensory problems. We know that this is pretty rare and not much is documented about it so while we have an answer we are still in the dark about what this could mean for her long term.
I have so many questions that I dont even know how to process. What will this mean for her long term, how will her adult life be affected. Will she need care her whole life? We have an older daughter that seems unaffected but we do not know if my husband or I passed something to her or not. I need to know how to cope with all of this, I was not prepared for this.
on Oct. 3, 2013 at 3:03 PM