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Arteriovenous malformation

Posted by on Oct. 29, 2013 at 1:01 AM
  • 9 Replies

Does anyone here have children with Arteriovenous malformation or aneurysms?  My ten year old daughter was diagnosed with Sturge Weber Syndrome in 2004 at 8 months of age, and now they are certain that she has AVM's.   She has to have an angiogram on 11/4 to see how bad. 


by on Oct. 29, 2013 at 1:01 AM
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Replies (1-9):
darbyakeep45
by Darby on Oct. 29, 2013 at 6:05 AM

Hugs mama!  I've never heard of it before.  Can you tell us a little about it?

jjamom
by Michele on Oct. 29, 2013 at 8:03 AM
DHs cousin just had surgery the other day for one, but he is in his 40's. Not an easy surgery by any stretch of the imagination. Hugs!
letstalk747
by Joy on Oct. 30, 2013 at 12:19 AM

i havent heard of this , keep us posted , ok

Linagma03
by Gold Member on Oct. 30, 2013 at 5:54 PM

 I don't have any experience with this. I've never heard of this before. Big Hugs! Keep us posted.

mandee1503
by Amanda on Oct. 30, 2013 at 6:54 PM
No experience! *hugs*
grandmalove2012
by Member on Oct. 31, 2013 at 12:16 AM
grandmalove2012
by Member on Dec. 19, 2013 at 8:43 PM

Good news!  Turns out my daughter doesn't have a AVM.  It's a venous anomaly 

Linagma03
by Gold Member on Dec. 19, 2013 at 11:58 PM
I am so glad! What if anything will they do about the vein anomoly?

Quoting grandmalove2012:

Good news!  Turns out my daughter doesn't have a AVM.  It's a venous anomaly 

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