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Raising Special Needs Kids Raising Special Needs Kids

Finally have an official list of diagnoses! *edit*

Posted by on Oct. 30, 2013 at 9:26 PM
  • 17 Replies

So my 10 yr old DD has been having increasing issues over the last few years.. She started off life as a 2 lb 3 oz 15 inch  24 weeks gestationaly developed preemie.. She had some brain bleeds at that time which her doctors now might be contributing to the disorders she has.. Lately it seems like we might be ramping up /cycling up to another psychiatric hospital lockdown.. Were having lot more far away doctors appointments too, so I was told I should apply for SSI for her.. Well in preperation I got with her councelor and got an offical list of her disorders.

312.81 Conduct Disorder

299.80 Pervasive Developement Disorder NOS

314.01 Attention Deficit Hyperactivity Disorder

299.0 Autism

299.80 Asperger's Disorder

300.02 Generalized Anxiety Disorder

301.83 Borderline Personality Disorder (rule out due to age no full diagnosis)

313.81 Oppositional Defiant Disorder

This is the first time Ive been able to get anyone to sit down and give me all the information I wanted..  Kind of feel daunted I guess cause this seems like a lot..   Lately every day has been such a huge battle.. Shes leaving class 3-4 times a day now due to blow ups..   Her dad and I are divorced and remarried to other people.. When she acts up at all he wont allow her to come over to vist, instead just takes her older sister and makes no effort to spend even an hour at the park with her.. which makes her behavior even worse.   As she is a Daddys girl and wants more time with him not less.  Guess this is partly just a "whew" get it off my chest but would like to hear from other moms dealing with some of these issues.    Anyway Ty ahead of time for at least listening!


**Question lot of you are saying some of these she shouldnt be diagnosed with at the same time.  If you are diagnosed with some of this and later they decide  its something else  should they have removed a previous diagnosis?      To answer one thing.. I was told that the conduct disorder was a seperate thing and it was due to she had been violent  during some of her melt downs.     Ive dealt with her behavior for years, the actually getting diagnosis identified all at one time is newer.  Doctors have said one thing here and one thing there but never sat down and said.. this , this , and this are all on record for her**

by on Oct. 30, 2013 at 9:26 PM
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Replies (1-10):
Linagma03
by Gold Member on Oct. 30, 2013 at 11:35 PM

 Hi. I'm Teri I'm raising 3 grandkids one has special needs she has a list of issues too. You'll enjoy being a part of this group.

Welcome to the group.

mandee1503
by Amanda on Oct. 30, 2013 at 11:37 PM
I'm glad you got some dx. It can be a real battle.
arkansasmama08
by Gold Member on Oct. 31, 2013 at 1:11 AM
Are these official diagnoses' or a list of possibilities? Odd, aspergers, and autism ate all different levels of the autism spectrum
darbyakeep45
by Darby on Oct. 31, 2013 at 6:22 AM
1 mom liked this

I was thinking the same thing....one person can't have PDD/NOS and Aspergers at the same time...they are 2 different diagnoses on the Autism spectrum...you're either one or the other.

Quoting arkansasmama08:

Are these official diagnoses' or a list of possibilities? Odd, aspergers, and autism ate all different levels of the autism spectrum


saphiraka
by Member on Oct. 31, 2013 at 7:39 AM



Quoting arkansasmama08:

Are these official diagnoses' or a list of possibilities? Odd, aspergers, and autism ate all different levels of the autism spectrum


They have her having both diagnosis according to whats in her records.  And this is the whole list of what they say she has..Way I understood it Autism is like a general diagnosis spectrum and that there are several diagnoses that fall under the spectrum in addition like Aspergers.. But Im no expert or anything.. This is just what the records from the previous counseling place we went to, Rivendell Psychiatric Hospital in Benton AR and the tests they ran at her at our current drs at the  Arkansas counseling and psychodiagnositcs Inc, In Arkadelphia AR.... Im currently waiting on an appointment at a place in Little Rock called Dennis Developemental Center at Childrens Hospital.. Our file is stil sitting on the triage nurses desk there, I was told not to expect being seen any sooner than 6months  lol.  She is really struggling in school this year academically too.  She has 504 plan in place  and they pull her out for part of Math to do smaller group.  We are trying to get an IQ test done as well, which may have to be done sooner than we can get in to The Denis Developemental Center,,  Shes never had one done.. Its just been within the last year or so that school has become more difficult for her.. K-3 grades were good,  Shes in 5th now  although I disagreed with passing her last year..  They said since none of her Fs were in  English or Math they werent retaining her.  To me though if you have Ds and Fs then obviously you arent ready to learn more advanced stuff.. So I feel stress and lack of understanding my be adding to the # of blow ups were having.

DDDaysh
by on Oct. 31, 2013 at 9:18 AM
2 moms liked this

I agree that this list seems....  well, for lack of a better word, half assed.  

I don't see how they could give her PDD-NOS, Autism, and Asperger's.  For one thing, the Asperger's diagnosis is semi-"out of date" given the new DSM-V.  However, with PDD-NOS the NOS stands for "Not Otherwise Specified".  It's what they give kids when it's too soon to know if it's something else.  If they KNOW it's something else, in this case Autism/Asperger's, it's no longer NOS, it's specified.  

I also thought that ODD and "Conduct Dissorder" were basically the same thing, the difference being the age of the patient.  I'm not as certain about this one, but I thought that was the case.  

I'm also really disturbed by the fact that they'd even try to label her with Borderline Personality Dissorder given her age (which is clearly too young for the diagnosis) and the fact that they are labeling her with an Autism Spectrum dissorder, ODD, and ADHD.  There's basically nothing under the Borderline criteria that can't be accounted for under one of the other Dx's, especially given her age.  

arkansasmama08
by Gold Member on Oct. 31, 2013 at 9:55 AM
Yes, it sounds likely that though these are all on record, sine may be outdated. She could've started with odd, then autism, then aspergers for example, bit the previous one no longer applies. Make sense?

Dennis developmental does take quite a while, depending what Dr you're seeing. If its only an IQ test. It may not be as long. If you're needing a whole evaluation. It could take a while. We waited 9 months to get my oldest in and then got a lazy Dr who wouldn't listen or read his file and we left with nothing. We immediately asked for another Dr, waited 13 months for her, but she was incredible and we got his asd diagnosis. My younger 2 were pushed to the tip of her list and we have our appointment for them in February. She's worth the wait though.

anyway, hope this helped clear a few things up.


Quoting saphiraka:




Quoting arkansasmama08:

Are these official diagnoses' or a list of possibilities? Odd, aspergers, and autism ate all different levels of the autism spectrum



They have her having both diagnosis according to whats in her records.  And this is the whole list of what they say she has..Way I understood it Autism is like a general diagnosis spectrum and that there are several diagnoses that fall under the spectrum in addition like Aspergers.. But Im no expert or anything.. This is just what the records from the previous counseling place we went to, Rivendell Psychiatric Hospital in Benton AR and the tests they ran at her at our current drs at the  Arkansas counseling and psychodiagnositcs Inc, In Arkadelphia AR.... Im currently waiting on an appointment at a place in Little Rock called Dennis Developemental Center at Childrens Hospital.. Our file is stil sitting on the triage nurses desk there, I was told not to expect being seen any sooner than 6months  lol.  She is really struggling in school this year academically too.  She has 504 plan in place  and they pull her out for part of Math to do smaller group.  We are trying to get an IQ test done as well, which may have to be done sooner than we can get in to The Denis Developemental Center,,  Shes never had one done.. Its just been within the last year or so that school has become more difficult for her.. K-3 grades were good,  Shes in 5th now  although I disagreed with passing her last year..  They said since none of her Fs were in  English or Math they werent retaining her.  To me though if you have Ds and Fs then obviously you arent ready to learn more advanced stuff.. So I feel stress and lack of understanding my be adding to the # of blow ups were having.


jjamom
by Michele on Oct. 31, 2013 at 10:14 AM
My son doesn't have any of these dx, but I have found with my son, that anything he's ever been diagnosed with (and meds he has been on) is sometimes still in his records. But, each specialist asks me at each visit for updates.

The other possibility is that because PDD and Aspergers fall within the Autism Spectrum, they may be listing it as Autism as well, like as an umbrella.
SamMom912
by Silver Member on Oct. 31, 2013 at 10:50 AM

Its seems as if they should have told you your DD has the alphabet... Sorry, but wow... Yes, a lot of these are out of date. WHEN did these Dxs happen? Conduct disorder went out with bellbottoms! And I agree that PDD is a delay that by 10 has worked itself out.. And would either just be ASD.. Sme Drs still give Aspie as DX.. But then they wouldnt ALSO give PDD AND Autism.. 

This is VERY odd. 

Where did you take her? How long were the diagnosical tests? What type of Doctor did she see? Was it more then 1? 

Autiziumom
by Bravo on Nov. 1, 2013 at 12:06 AM
Wow! Bless u and ur family. Hope God.gives u all the.strength.u need!.
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