We will know by the end of the year if Konner has SMA or not. Right now they are leaning in that direction of diagnosis. Everything depends on whether or not he has seziures or not though. So we are waiting on an EEG overnight visit to get that out of the way.
What kind of symptoms does your child have? Are they in a wheelchair, walking aids, or can they walk? What type do they have? I'm curious to learn more about this from other moms going through it. Thank you