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Raising Special Needs Kids Raising Special Needs Kids

Low weight child UPDATE

Posted by on Nov. 29, 2013 at 10:29 PM
  • 13 Replies

    My DD 7 was a preemie at 32 weeks weighing 3.5 pounds and has had low weight ever since.  She even as a young toddler diagnosed with failure to thrive ( I panicked when the dr told me but was assured it was just to get testing they didn't suspect me of abuse or anything) and we had to visit the dr every month for 6 months and she gained but has never really been on the charts.  She weight 35 lbs now.  She hates eating.  It is a struggle all the time we have so many supplements and do everything in our power to add calories to her diet but the kid hates eating.   I have wondered if there are sensory issues.     Do any of your children have them?  if so how did they get diagnosed?  The dr thinks she is just small but she is really small.  She has already broken her arm twice and once was just tripping at the playground.    The dr keeps dismissing me but I worry all the time about it.  Anyone else have anything similar?



UPDATE:  WE took her to the dr yesterday apparently my scale was off, eek. She actually weighs 40 lbs YAY!.  She says her growth is on track for her height and her history, however she IS anemic and more than likely has sensory issues.  My sister has hereditary spherocytosis ( its a blood disorder) and apparently my daughter has some of the same symptoms so we are getting a ton of bloodwork today and the Dr will be working with us on the sensory issues.    I am nervous about the anemia  since this blood disorder is hereditary, I'm glad her weight is good but now I have this other concern lol.  

by on Nov. 29, 2013 at 10:29 PM
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Replies (1-10):
arkansasmama08
by Gold Member on Nov. 29, 2013 at 10:32 PM
I would definitely ask for further testing. If she's easily breaking bones, she may have something else going on, or at least need more calcium supplements. They can't deny you a referral. Just ask for one to Ortho or GI at a children's hospital.
Momof4AEMW
by Gold Member on Nov. 29, 2013 at 11:12 PM

My triplets were 27 weeks, born 2 lb, 6 oz, 2 lb, 7 oz, and 1 lb, 14 oz.  My oldest was term baby and in the 90th-100% percentiles at every reading.  At age 10 now he is 5 ft 4 with size 10 men's shoes!  Of my preemies, the bigger two are pretty routinely 25th percentile for one and 23th-50th for the other.  My tiny one was in the less than 5% for many years and watched for ftt.  Last year she finally hit 5%, this year 10% weight as the age 4-5 change expectation was not very high.  She basically gains 3 lbs a year, 3 inches.  She's 26 lbs now and 3 ft at 5.  She does also have down syndrome so these percentages are on the down syndrome chart, she is not even on the regular chart, she'd be completely below it.  She has some sensory issues but also developmental delays.  She's stuck on baby food consistency food and that is it.  Both my other 2 have sensory oral issues.  There are certain textures they really fight.  All 3 have had feeding therapy.  It's a lot of ups and downs on a long road.  But they have come a long way from those preemie days! 

lillettemomma
by on Nov. 29, 2013 at 11:39 PM
Odd is 3 and barely 25 lbs she is considered severely underweight and ydd is almost 2 and barely 18 lbs and is diagnosed with failure to thrive..... they both have always been tiny even at birth (ydd 5lbs10oz and ydd 5lbs7oz) and both were basically full term (odd 9 days early and ydd on her due date).... we do a thing called child led eating basically we let them eat what they want when they want rather that structured meals that me and df pick.... we take them shopping and they pick out what they want to eat (within reason of course) and then basically if they ask to eat they eat....it has worked so far cause they are getting more calories than before and their weight is stabilizing and they are gaining a bit..... odd is diagnosed with autism spd and a speech disorder and we are waiting for ydd to be diagnosed....
darbyakeep45
by Darby on Nov. 30, 2013 at 5:48 AM

Hugs mama!  My son was born at 38 weeks weighing 5 pounds...he had IUGR, and just didn't grow.  He's always been small and now he's 5 years old, eating baby food and primarily fed through a feeding tube.  He's making progress in feeding therapy and we're very proud of him!  He's now 39 inches tall and 39 pounds:)  Short and stout!

trio8707
by Bronze Member on Nov. 30, 2013 at 11:22 AM

My triplets were born at 23 weeks, they are all tiny for their age (they are 6 now).  Olivia was diagnosed failure to thrive, and we decided to put in a G-tube so that she can get the necessary calories.  90% of her feeds are through the tube, getting her to eat is such a struggle and so frustrating that I usually end up giving in and giving her a tube-feed.  

She has very severe oral aversions (all sensory issues).  She's in feeding therapy, it has helped a little.  She is also super stubborn and in such a habit of the tube now (my fault, I know, but it's constant survival mode in my house).  Hope you get answers and the help you need.

JOEJULA
by Member on Nov. 30, 2013 at 11:53 PM

I would say at 7 years old and 35lbs  this is a huge red flag. The fact that your doctor hasn't sent you anywhere for further evaluation is a concern as well. I know we get use to our children and the way they are as they get older. I would highly suggest sending your child to a specialist. I think feeding therapy or even a G tube at this point could be considered.

SiberianGab
by on Dec. 1, 2013 at 12:05 AM

Please tell me her height? Our daughter was 39 lbs last year, age 6.5, and 46 inches. For her height, her weight qualified her to go into an eating disorder (!!!!!!!!!!) program at the local Children's Hospital. But if she was half a foot shorter, her weight wouldn't have been so alarming. It was like hugging a skeleton, it broke my heart. And she hated to eat as well... And if you wish, I will tell you WHY she had an eating aversion, who knows? It may or may not relate to your DD. Mine had SPD and a few other problems as well - major anxiety, ADHD, trichotillomania, night terrors, to name a few.

letstalk747
by Joy on Dec. 1, 2013 at 12:19 AM

 can she chew and swallow and bite ok ?

does she seem to have reflux- heartburn ?

are her teeth ok ?

Lordgodempress
by Member on Dec. 1, 2013 at 12:35 PM


yes to all of the above.,, She doesn't like eating but will eat certain things really well but its only 3 things ..pizza,bagels and popcorn.  

Quoting letstalk747:

 can she chew and swallow and bite ok ?

does she seem to have reflux- heartburn ?

are her teeth ok ?



Lordgodempress
by Member on Dec. 1, 2013 at 12:37 PM


The dr keeps saying that its proportionate with her height ( she is short) and will just be a short person.   They did do a lot of tests when she was little but she started gaining,  I will be calling the dr again this week and asking for a referral

Quoting JOEJULA:

I would say at 7 years old and 35lbs  this is a huge red flag. The fact that your doctor hasn't sent you anywhere for further evaluation is a concern as well. I know we get use to our children and the way they are as they get older. I would highly suggest sending your child to a specialist. I think feeding therapy or even a G tube at this point could be considered.



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