DH told me that I was just looking for problems! **venting long**
I was on facebook the other day and someone posted a thing about epilepsy and the site "Epilepsy Foundation" so I clicked on it to see what this one had to say. Well they gave generalized info about the different types which Lina has 3 of what was listed. Then I saw "gelastic" & "dacrystic" so I checked them out because we know a Mom on here whose son has the gelastic type. Well I was reading it and the dacrystic symptoms match something that Lina does on occassion.
"In some children the vocalization sounds more like crying and the facial contraction resembles a grimace. It is not uncommon for gelastic & dacrystic seizures to go undetected for years because of their unusual presentation. Often the seizures go unrecognized until some other type of seizure appears. Gelastic/Dacrystic often occur as a child is falling to sleep, but can occur throughout the day and night. Infants and children may be aroused out of sleep by the seizure then fall right back to sleep. Some children seek comfort from a parent or favorite toy for no apparent reason others will run to a location where they feel safe."
The dacrystic from what I could decypher were pretty much like the gelastic. Since 95% of Lina's seizures happen at night the possibility of her having the dacrystic because of what she does on occassion is probably when she would have them.
Here is what happens ON OCCASSION. She will be almost asleep or just having fallen asleep when she will begin to cry, she has no tears, she has a slight frowning face, she allows me to comfort her but never really wakes up all this will last maybe a minute or less. She does at times have bad dreams and will cry in her sleep but those times it is a real crying with tears and waking up and takes awhile to calm her and get her back to sleep, there have been nights where she has been up for over an hour before I can get her to go back to sleep.
I was telling DH about what I had read and how those times when she cried like that. He said that I was trying to "give the kid more problems than she already has". I told him that I know the difference between nightmare crying and whatever this is that she does and I'm NOT trying to say that every time she cries during the night she is having a seizure. Well it went downhill from there until I just went outside to have a cigarette.
So here it is: Am I looking for more than what is really there or am I doing what all of us have done and am following the evidence and what my gut is telling me?
- My 2nd time around. I LOVE EVERY MINUTE!!!
- R & A Lina
- teenage terror time! special to all of us!