FINALLY! But the chaos doesn't end here **appt update**
But the chaos isnt ending here. He has a cardiology appt tomorrow with a different cardiologist. Today we have to recertify for our nursing company. Then his GI wants to see him next week and on the 24th. Then he's seeing the ADHD clinic on the 19th. Then blood draws and whatever tests GI wants. And Ty starts homebound schooling Monday. Plus I'm supposed to have an endoscopy next week. Total chaos this month!
Not sure how to feel. Was nervous going in because everyone who has seen him has said it takes a lot to convince him there's an issue and he's dismissive and egotistical and a jerk. Well our cardiologist treating Ty's dysautonomia is who referred us to this cardio. He was awesome! Seriously the nicest guy! Got right to the point, very open about his thoughts and explaining everything. We saw him because when sleeping Ty's heart rate will drop into the 40's. So he said his concern isn't the number itself but the long pauses causing that number. He said the machines work by averaging out the rate so you can have 90bpm then a long pause then 90bpm again but the machines averafe it out to 67bpm. So the plan is to do holter monitors every othrr month for 6 months. If we keep missing it, they will implant a recorder in his chest and set the parameters of when to record. If they find he's having pauses of 5+ seconds or more, then they will put in a pacemaker. If it goes untreated, it could develop a deadly heart arrythmia. He said that most kids get the pacemakers out after 5-10yrs so it doesnt have to be permanent.