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I am SN and my DS is in the process of being diagnoised

HI everyone...I hope I am in the right place. I am a single mom to a boy I have neurofibromatosis type 1 and my son is in the testing/final stages of being diagnosed with ADHD/ADD and sensory processing disorder. I do not have much support from my family, they dont belive in it and think its overly diagnoised and that it is only diet related.

I just need some advice and I honestly dont know what else.

Again I am not sure if this is the right place. and sorry for spelling and grammar issues its apart of the NF1

by on Feb. 27, 2014 at 2:56 AM
Replies (21-23):
Connorsmommy13
by Member on Feb. 28, 2014 at 1:51 AM

 

Quoting Linagma03:

Welcome to the group. Yes you are in the right place. I hope you will feel like you have lots of friends here in a short period of time. This is a great place to talk, give and get advice or ideas, vent, brag. It has been a real help to me having found these other Moms! 

 Thank you, I am feeling like I am a bit of a island, new to this, grateful to finally have a voice and that I am being heard by the school, (thank God for homeschooling) need some support...I dont want my son judged he is a good kid...just needs a little extra help.

Thanks for the warm welcome though.

Codysmom2106
by Bronze Member on Feb. 28, 2014 at 3:53 AM

Welcome! My son has ADHD, spd as well as cmt1a. 

MamaCeleste0722
by Member on Feb. 28, 2014 at 4:24 AM
Hi! I have 2 kids with NF1 and ADHD as well. One of my kids has sensory issues that she's receiving OT for. The other one has learning disabilities. It's tough.
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