Join the Meeting Place for Moms!
Talk to other moms, share advice, and have fun!

(minimum 6 characters)

Raising Special Needs Kids Raising Special Needs Kids

Teachers & Your Child's IEP * UPDATE*

Posted by on Feb. 28, 2014 at 6:17 PM
  • 22 Replies

I really need your advice in how to handle a situation that's been going on for over a year now.   October 2012, I filed for SSI for my 10 year old who has Sturge Weber Syndrome,  is on medication for seizures, and is developmentally disabled. 

Her special ed teacher, as well as her PT teacher were very insistent that there was nothing wrong with her.  At least not enough to get SSI.   They have been very vocal about them not agreeing with the government handing out SSI payments for children.

We were turned down TWICE by Social Security, because of "inconsistent" reports from the school.    We finally had a hearing in front of the judge, and he has the case open.  

They have done STAR reading tests with her, and all of them that she's been sent home with have said 1.4 or lower for grade level in reading.   BUT...  on her IEP updates they're saying the end of second grade!!!   

I've been arguing with the special ed teacher telling her that it didn't seem right for them to put that on her IEP updates.      She said that test results vary.   I discussed this with my daughters pediatric neurologist, and he suggested that Isabel get tested by a child development pyschiatrist. 

So... today she had some testing done.   We won't get ALL of the results back until March 7th, but...  They did a reading test on her...   And lo and behold it's 1.5 grade level compared to 2.8 they're saying.

Last week, the school psychologist called me to schedule my daughter's IEP meeting, an d I told her that I wanted to hold off on the meeting, until AFTER  her testing.  She insisted on having the IEP meeting March 3rd.   She said that we could just add to it later with whatever the testing came up with.  and adjust things accordingly.    I told her about her testing was today 2/28.  Well, I get the IEP meeting invitation and guess when the IEP meeting was scheduled for?  TODAY!   So I sent back the invitation and told them that I wanted it on March 14th, so that we had all of the testing in, and go from there. I have NOT heard anything back.  And don't know if they held it today or not.

Also... should the school take into consideration what this testing says?   And apply it to her IEP????

Help! 


UPDATE:  

My daughter's special ed teacher got ahold of me today, and was very rude and obnoxious.  She was asking what my daughter was tested for, which tests were administered (Which I don't know I wasn't in the room when they did them.  But I will find out on Friday what they were)  

She said that I approved the meeting on the 28th and I said "NO. I approved the meeting on March 3rd when I could be there."  We argued a little, and that was that.  

HOW do you deal with this kinds of people?   I got ahold of Wisconsin Facets which helped me figure out what to say to them.   I requested a Review Revise Meeting.   Which they were very rude about. 

They don't like it when you fight for your rights do they? 


Forgot to  mention that the guy from WIsconsin Facets said that he can be on the phone with me during this new meeting.  :)  

by on Feb. 28, 2014 at 6:17 PM
Add your quick reply below:
You must be a member to reply to this post.
Replies (1-10):
mandee1503
by Amanda on Feb. 28, 2014 at 6:54 PM
Yes they should and if they aren't I'm sure someone who knows more can tell you exactly what should be done.
Momof4AEMW
by Silver Member on Feb. 28, 2014 at 7:17 PM

I think you are due for a new special ed and speech path, personally.

At my school, yes my sped does apply the doctor info right into the IEP (with my permission).  It is an explaination, not an excuse, and I personally value the dr opinion way more than the schools.  My SPED is also awesome!! But I know it is not always that way, just lucky this year. 

DyslexiaParent
by Member on Feb. 28, 2014 at 7:25 PM
2 moms liked this

Special ed law is that they must "consider" your independent testing results.  Our school scoffed at us, "We have to consider it, but we don't have to accept it, so there.. we considered it. Now.. " and they proceeded to do whatever the heck they wanted.  YOU have a right to be an EQUAL member of your child's IEP team and they are supposed to do what they can to include you in the process. If they are specifically excluding you, I'd highly suggest you arm yourself with resources / book:

1) The book, "From Emotions to Advocacy" - or  their website: Fetaweb.org

2) Wrights Law - His book or the website, Wrightslaw.com

3) Special Education Guidebook for Parents of Children with Specific Learning Disabilities

It's really important to arm yourself with knowledge of when they are violating your child's rights because it WILL impact her education.  Excluding you from the IEP meeting and them manipulating the help you can get is just not right!

nicki.hemingway
by Nicki on Feb. 28, 2014 at 7:27 PM

I'd be pissed off.  Can you get an advocate through your local ARC?  Ours is free for children with Intellectual Disabilities and Developmental delays.  It might be worth a call.

grandmalove2012
by Member on Feb. 28, 2014 at 11:57 PM


Quoting Momof4AEMW:

I think you are due for a new special ed and speech path, personally.

At my school, yes my sped does apply the doctor info right into the IEP (with my permission).  It is an explaination, not an excuse, and I personally value the dr opinion way more than the schools.  My SPED is also awesome!! But I know it is not always that way, just lucky this year. 

Our family is actually moving to a different city this summer.   So she'll get all new people. 


grandmalove2012
by Member on Feb. 28, 2014 at 11:58 PM
1 mom liked this

Thank you.  I will look into all of this!

Quoting DyslexiaParent:

Special ed law is that they must "consider" your independent testing results.  Our school scoffed at us, "We have to consider it, but we don't have to accept it, so there.. we considered it. Now.. " and they proceeded to do whatever the heck they wanted.  YOU have a right to be an EQUAL member of your child's IEP team and they are supposed to do what they can to include you in the process. If they are specifically excluding you, I'd highly suggest you arm yourself with resources / book:

1) The book, "From Emotions to Advocacy" - or  their website: Fetaweb.org

2) Wrights Law - His book or the website, Wrightslaw.com

3) Special Education Guidebook for Parents of Children with Specific Learning Disabilities

It's really important to arm yourself with knowledge of when they are violating your child's rights because it WILL impact her education.  Excluding you from the IEP meeting and them manipulating the help you can get is just not right!


grandmalove2012
by Member on Feb. 28, 2014 at 11:59 PM

I am livid.   There is a group that I'm going to call Monday and ask them for direction. 

Quoting nicki.hemingway:

I'd be pissed off.  Can you get an advocate through your local ARC?  Ours is free for children with Intellectual Disabilities and Developmental delays.  It might be worth a call.


Linagma03
by Gold Member on Mar. 1, 2014 at 12:02 AM
1 mom liked this

I would be pissed off too. They are deliberately trying to exclude you from the meetings so that they can put into the IEP what ever they want to. 

I hope that the information from the specialist will be what the SSI Judge will consider more than what the school has to say. 

Kind of sounds like the school is treading that fine line where they are staying just on the legal side but pushing it so that they can get what they want. I think some kind of advocate or other knowledgable person is who you need to talk to. 

I wish you the best of luck! 

grandmalove2012
by Member on Mar. 1, 2014 at 12:20 AM

I'll be bringing along my best friend who is VERY WELL versed in IEP's when we do have a meeting after all of my daughter's test results are in.    I will go through every line in that IEP to make sure that it benefits my daughter.   Because if her reading level hasn't improved in TWO years... THere is def something wrong!!

Quoting Linagma03:

I would be pissed off too. They are deliberately trying to exclude you from the meetings so that they can put into the IEP what ever they want to. 

I hope that the information from the specialist will be what the SSI Judge will consider more than what the school has to say. 

Kind of sounds like the school is treading that fine line where they are staying just on the legal side but pushing it so that they can get what they want. I think some kind of advocate or other knowledgable person is who you need to talk to. 

I wish you the best of luck! 


Linagma03
by Gold Member on Mar. 1, 2014 at 12:42 AM

Yes there is something wrong with what they are doing. I hope that your friend will be able to help you. If you don't get a copy of the IEP before the meeting then I would make them sit there and wait as I went thru it line by line and highlight all the areas that are of concern. Also take a copy of the test results so that you can compare them to what is being said or put down in writing. 

Could they just be acting more like glorified babysitters than teachers & therapists? Are there any other parents that you could ask questions of in regards to if their children are making any progress or any of the other things that are happening? I'd be rather discreet about it so that the school doesn't add that to their bias of you and dd. By talking to other parents you could determine if this is isolated to your dd because of their attitude toward you applying for SSI or if this is a deeper problem. Those answers would help you a lot. 

Quoting grandmalove2012:

I'll be bringing along my best friend who is VERY WELL versed in IEP's when we do have a meeting after all of my daughter's test results are in.    I will go through every line in that IEP to make sure that it benefits my daughter.   Because if her reading level hasn't improved in TWO years... THere is def something wrong!!

Quoting Linagma03:

I would be pissed off too. They are deliberately trying to exclude you from the meetings so that they can put into the IEP what ever they want to. 

I hope that the information from the specialist will be what the SSI Judge will consider more than what the school has to say. 

Kind of sounds like the school is treading that fine line where they are staying just on the legal side but pushing it so that they can get what they want. I think some kind of advocate or other knowledgable person is who you need to talk to. 

I wish you the best of luck! 


Add your quick reply below:
You must be a member to reply to this post.
Join the Meeting Place for Moms!
Talk to other moms, share advice, and have fun!

(minimum 6 characters)