I really need your advice in how to handle a situation that's been going on for over a year now. October 2012, I filed for SSI for my 10 year old who has Sturge Weber Syndrome, is on medication for seizures, and is developmentally disabled.
Her special ed teacher, as well as her PT teacher were very insistent that there was nothing wrong with her. At least not enough to get SSI. They have been very vocal about them not agreeing with the government handing out SSI payments for children.
We were turned down TWICE by Social Security, because of "inconsistent" reports from the school. We finally had a hearing in front of the judge, and he has the case open.
They have done STAR reading tests with her, and all of them that she's been sent home with have said 1.4 or lower for grade level in reading. BUT... on her IEP updates they're saying the end of second grade!!!
I've been arguing with the special ed teacher telling her that it didn't seem right for them to put that on her IEP updates. She said that test results vary. I discussed this with my daughters pediatric neurologist, and he suggested that Isabel get tested by a child development pyschiatrist.
So... today she had some testing done. We won't get ALL of the results back until March 7th, but... They did a reading test on her... And lo and behold it's 1.5 grade level compared to 2.8 they're saying.
Last week, the school psychologist called me to schedule my daughter's IEP meeting, an d I told her that I wanted to hold off on the meeting, until AFTER her testing. She insisted on having the IEP meeting March 3rd. She said that we could just add to it later with whatever the testing came up with. and adjust things accordingly. I told her about her testing was today 2/28. Well, I get the IEP meeting invitation and guess when the IEP meeting was scheduled for? TODAY! So I sent back the invitation and told them that I wanted it on March 14th, so that we had all of the testing in, and go from there. I have NOT heard anything back. And don't know if they held it today or not.
Also... should the school take into consideration what this testing says? And apply it to her IEP????
My daughter's special ed teacher got ahold of me today, and was very rude and obnoxious. She was asking what my daughter was tested for, which tests were administered (Which I don't know I wasn't in the room when they did them. But I will find out on Friday what they were)
She said that I approved the meeting on the 28th and I said "NO. I approved the meeting on March 3rd when I could be there." We argued a little, and that was that.
HOW do you deal with this kinds of people? I got ahold of Wisconsin Facets which helped me figure out what to say to them. I requested a Review Revise Meeting. Which they were very rude about.
They don't like it when you fight for your rights do they?
Forgot to mention that the guy from WIsconsin Facets said that he can be on the phone with me during this new meeting. :)